Experiences of completed and withdrawn unspecified kidney donor candidates in the United Kingdom: An inductive thematic analysis from the BOUnD study.
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| Title: | Experiences of completed and withdrawn unspecified kidney donor candidates in the United Kingdom: An inductive thematic analysis from the BOUnD study. |
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| Authors: | Zuchowski, Mira (AUTHOR), Mamode, Nizam (AUTHOR), Draper, Heather (AUTHOR), Gogalniceanu, Peter (AUTHOR), Norton, Sam (AUTHOR), Chilcot, Joseph (AUTHOR), Clarke, Alexis (AUTHOR), Williams, Lynsey (AUTHOR), Auburn, Timothy (AUTHOR), Maple, Hannah (AUTHOR) |
| Source: | British Journal of Health Psychology. Sep2021, Vol. 26 Issue 3, p958-976. 19p. 2 Charts. |
| Subjects: | Thematic analysis, Kidneys, Judgment sampling, Semi-structured interviews, Charitable giving |
| Geographic Terms: | United Kingdom |
| Abstract: | Objectives This study sheds light on some controversial aspects of unspecified kidney donation (UKD) as well as the ways in which potential donors are screened and prepared for the donation experience and its aftermath. The aim of this study was to qualitatively investigate the experiences of individuals involved in the United Kingdom (UK) UKD scheme, including those who complete the donation, are eventually medically withdrawn, or self-withdraw. Better insight into the different experiences of these groups will provide useful guidance to clinical teams on how to better address the differing psychological needs of completed donors as well as those who do not proceed to donation. Methods A purposive sample was recruited through the Barriers and Outcomes in Unspecified Donation (BOUnD) study covering 23 transplant centres in the United Kingdom. Semi-structured interviews were audio-recorded and transcribed verbatim and subjected to inductive thematic analysis. Results Participants consisted of 15 individuals who had donated, 11 who had been withdrawn by the transplant team and nine who had self-withdrawn. The analysis resulted in six themes and 14 subthemes. The major themes were maximizing and sharing benefits; risk-to-motivation analysis; support; self-actualization/finding meaning; the donor as patient; and relationship with the transplant team. Conclusions The data demonstrate that, although all donors enter the process with a similar level of commitment, those who did not proceed to donation expressed dissatisfaction and lingering emotional consequences linked to lack of follow-up from transplant teams. The implication for the UKD programme is that from the beginning there needs to be a strategic and consistent approach to managing expectations in order to prepare those who embark on the donation process for all possible outcomes and their associated emotional consequences. [ABSTRACT FROM AUTHOR] |
| Copyright of British Journal of Health Psychology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 151739803 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Experiences of completed and withdrawn unspecified kidney donor candidates in the United Kingdom: An inductive thematic analysis from the BOUnD study. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Zuchowski%2C+Mira%22">Zuchowski, Mira</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mamode%2C+Nizam%22">Mamode, Nizam</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Draper%2C+Heather%22">Draper, Heather</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Gogalniceanu%2C+Peter%22">Gogalniceanu, Peter</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Norton%2C+Sam%22">Norton, Sam</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chilcot%2C+Joseph%22">Chilcot, Joseph</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Clarke%2C+Alexis%22">Clarke, Alexis</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Williams%2C+Lynsey%22">Williams, Lynsey</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Auburn%2C+Timothy%22">Auburn, Timothy</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Maple%2C+Hannah%22">Maple, Hannah</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22British+Journal+of+Health+Psychology%22">British Journal of Health Psychology</searchLink>. Sep2021, Vol. 26 Issue 3, p958-976. 19p. 2 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Kidneys%22">Kidneys</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Semi-structured+interviews%22">Semi-structured interviews</searchLink><br /><searchLink fieldCode="DE" term="%22Charitable+giving%22">Charitable giving</searchLink> – Name: SubjectGeographic Label: Geographic Terms Group: Su Data: <searchLink fieldCode="DE" term="%22United+Kingdom%22">United Kingdom</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Objectives This study sheds light on some controversial aspects of unspecified kidney donation (UKD) as well as the ways in which potential donors are screened and prepared for the donation experience and its aftermath. The aim of this study was to qualitatively investigate the experiences of individuals involved in the United Kingdom (UK) UKD scheme, including those who complete the donation, are eventually medically withdrawn, or self-withdraw. Better insight into the different experiences of these groups will provide useful guidance to clinical teams on how to better address the differing psychological needs of completed donors as well as those who do not proceed to donation. Methods A purposive sample was recruited through the Barriers and Outcomes in Unspecified Donation (BOUnD) study covering 23 transplant centres in the United Kingdom. Semi-structured interviews were audio-recorded and transcribed verbatim and subjected to inductive thematic analysis. Results Participants consisted of 15 individuals who had donated, 11 who had been withdrawn by the transplant team and nine who had self-withdrawn. The analysis resulted in six themes and 14 subthemes. The major themes were maximizing and sharing benefits; risk-to-motivation analysis; support; self-actualization/finding meaning; the donor as patient; and relationship with the transplant team. Conclusions The data demonstrate that, although all donors enter the process with a similar level of commitment, those who did not proceed to donation expressed dissatisfaction and lingering emotional consequences linked to lack of follow-up from transplant teams. The implication for the UKD programme is that from the beginning there needs to be a strategic and consistent approach to managing expectations in order to prepare those who embark on the donation process for all possible outcomes and their associated emotional consequences. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of British Journal of Health Psychology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=151739803 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/bjhp.12514 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 19 StartPage: 958 Subjects: – SubjectFull: Thematic analysis Type: general – SubjectFull: Kidneys Type: general – SubjectFull: Judgment sampling Type: general – SubjectFull: Semi-structured interviews Type: general – SubjectFull: Charitable giving Type: general – SubjectFull: United Kingdom Type: general Titles: – TitleFull: Experiences of completed and withdrawn unspecified kidney donor candidates in the United Kingdom: An inductive thematic analysis from the BOUnD study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Zuchowski, Mira – PersonEntity: Name: NameFull: Mamode, Nizam – PersonEntity: Name: NameFull: Draper, Heather – PersonEntity: Name: NameFull: Gogalniceanu, Peter – PersonEntity: Name: NameFull: Norton, Sam – PersonEntity: Name: NameFull: Chilcot, Joseph – PersonEntity: Name: NameFull: Clarke, Alexis – PersonEntity: Name: NameFull: Williams, Lynsey – PersonEntity: Name: NameFull: Auburn, Timothy – PersonEntity: Name: NameFull: Maple, Hannah IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: Sep2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 1359107X Numbering: – Type: volume Value: 26 – Type: issue Value: 3 Titles: – TitleFull: British Journal of Health Psychology Type: main |
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