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Self‐advocates with Down syndrome research the lived experiences of COVID‐19 lockdowns in Aotearoa New Zealand.

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Title: Self‐advocates with Down syndrome research the lived experiences of COVID‐19 lockdowns in Aotearoa New Zealand.
Authors: Vaccarino, Franco (AUTHOR), Vaccarino, Zandra (AUTHOR), Armstrong, Duncan (AUTHOR), Borkin, Edward (AUTHOR), Hewitt, Alexandra (AUTHOR), Oswin, Andrew (AUTHOR), Quick, Caroline (AUTHOR), Smith, Erin (AUTHOR), Glew, Averill (AUTHOR)
Source: Journal of Applied Research in Intellectual Disabilities. Mar2023, Vol. 36 Issue 2, p300-309. 10p.
Subjects: Self advocacy, Down syndrome, Research methodology, Interviewing, Research funding, Stay-at-home orders, Thematic analysis, Content analysis, COVID-19 pandemic, Psychological resilience
Geographic Terms: New Zealand
Abstract: Background: Individuals with Down syndrome are particularly vulnerable to COVID‐19 because they are recognised as significantly immunocompromised. Yet their voices regarding their lived experiences of pandemic lockdowns have not been sought or heard. Aim: This study aims to describe the lived experiences of people with Down syndrome during the pandemic lockdowns in Aotearoa New Zealand to add evidence in order to inform systemic advocacy. Method: A mixed‐methods approach positioned within an inclusive research paradigm was used, in which a group of self‐advocates with Down syndrome co‐designed a structured interview schedule and conducted 40 face‐to‐face interviews. Key themes were identified by using content analysis. Results: Despite the difficulties associated with lockdowns and participants not receiving their usual supports and having to make significant adjustments, they remained positive, adapted well, and demonstrated a high level of resilience and adaptability. Conclusions: The findings add to the limited research on the lived experiences of people with Down syndrome during pandemic lockdowns. This research has given them a voice to contribute to policy, government initiatives, and service providers; particularly on issues around support during lockdown and staying connected with others. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Self‐advocates with Down syndrome research the lived experiences of COVID‐19 lockdowns in Aotearoa New Zealand.
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  Data: <searchLink fieldCode="AR" term="%22Vaccarino%2C+Franco%22">Vaccarino, Franco</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Vaccarino%2C+Zandra%22">Vaccarino, Zandra</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Armstrong%2C+Duncan%22">Armstrong, Duncan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Borkin%2C+Edward%22">Borkin, Edward</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Hewitt%2C+Alexandra%22">Hewitt, Alexandra</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Oswin%2C+Andrew%22">Oswin, Andrew</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Quick%2C+Caroline%22">Quick, Caroline</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Smith%2C+Erin%22">Smith, Erin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Glew%2C+Averill%22">Glew, Averill</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22">Journal of Applied Research in Intellectual Disabilities</searchLink>. Mar2023, Vol. 36 Issue 2, p300-309. 10p.
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  Data: <searchLink fieldCode="DE" term="%22Self+advocacy%22">Self advocacy</searchLink><br /><searchLink fieldCode="DE" term="%22Down+syndrome%22">Down syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Stay-at-home+orders%22">Stay-at-home orders</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22COVID-19+pandemic%22">COVID-19 pandemic</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+resilience%22">Psychological resilience</searchLink>
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  Data: Background: Individuals with Down syndrome are particularly vulnerable to COVID‐19 because they are recognised as significantly immunocompromised. Yet their voices regarding their lived experiences of pandemic lockdowns have not been sought or heard. Aim: This study aims to describe the lived experiences of people with Down syndrome during the pandemic lockdowns in Aotearoa New Zealand to add evidence in order to inform systemic advocacy. Method: A mixed‐methods approach positioned within an inclusive research paradigm was used, in which a group of self‐advocates with Down syndrome co‐designed a structured interview schedule and conducted 40 face‐to‐face interviews. Key themes were identified by using content analysis. Results: Despite the difficulties associated with lockdowns and participants not receiving their usual supports and having to make significant adjustments, they remained positive, adapted well, and demonstrated a high level of resilience and adaptability. Conclusions: The findings add to the limited research on the lived experiences of people with Down syndrome during pandemic lockdowns. This research has given them a voice to contribute to policy, government initiatives, and service providers; particularly on issues around support during lockdown and staying connected with others. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Group: Ab
  Data: <i>Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=161788656
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        Value: 10.1111/jar.13059
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      – Code: eng
        Text: English
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      Pagination:
        PageCount: 10
        StartPage: 300
    Subjects:
      – SubjectFull: Self advocacy
        Type: general
      – SubjectFull: Down syndrome
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Stay-at-home orders
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Content analysis
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      – SubjectFull: COVID-19 pandemic
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      – SubjectFull: Psychological resilience
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      – SubjectFull: New Zealand
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      – TitleFull: Self‐advocates with Down syndrome research the lived experiences of COVID‐19 lockdowns in Aotearoa New Zealand.
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              M: 03
              Text: Mar2023
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