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Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience.

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Title: Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience.
Authors: Robinson-Papp, Jessica, Lawrence, Steven, Wadley, Antonia, Scott, Whitney, George, Mary Catherine, Josh, Jo, O'Brien, Kelly K., Price, Collen, Uebelacker, Lisa, Edelman, E. Jennifer, Evangeli, Michael, Goodin, Burel R., Harding, Richard, Nkhoma, Kennedy, Parker, Romy, Sabin, Caroline, Slawek, Deepika, Tsui, Judith I., Merlin, Jessica S.
Source: AIDS Care. Sep2024, Vol. 36 Issue 9, p1291-1301. 11p.
Subjects: HIV infection risk factors, Substance abuse treatment, Chronic pain treatment, HIV prevention, Cost control, Chronic pain, Research funding, Mental health, Research evaluation, Questionnaires, HIV infections, Experience, Priority (Philosophy), Patients' attitudes, Medical care costs, Patient participation, Disease risk factors
Geographic Terms: United States
Abstract: The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR = 8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain. [ABSTRACT FROM AUTHOR]
Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Priorities for HIV and chronic pain research: results from a survey of individuals with lived experience.
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  Data: <searchLink fieldCode="AR" term="%22Robinson-Papp%2C+Jessica%22">Robinson-Papp, Jessica</searchLink><br /><searchLink fieldCode="AR" term="%22Lawrence%2C+Steven%22">Lawrence, Steven</searchLink><br /><searchLink fieldCode="AR" term="%22Wadley%2C+Antonia%22">Wadley, Antonia</searchLink><br /><searchLink fieldCode="AR" term="%22Scott%2C+Whitney%22">Scott, Whitney</searchLink><br /><searchLink fieldCode="AR" term="%22George%2C+Mary+Catherine%22">George, Mary Catherine</searchLink><br /><searchLink fieldCode="AR" term="%22Josh%2C+Jo%22">Josh, Jo</searchLink><br /><searchLink fieldCode="AR" term="%22O'Brien%2C+Kelly+K%2E%22">O'Brien, Kelly K.</searchLink><br /><searchLink fieldCode="AR" term="%22Price%2C+Collen%22">Price, Collen</searchLink><br /><searchLink fieldCode="AR" term="%22Uebelacker%2C+Lisa%22">Uebelacker, Lisa</searchLink><br /><searchLink fieldCode="AR" term="%22Edelman%2C+E%2E+Jennifer%22">Edelman, E. Jennifer</searchLink><br /><searchLink fieldCode="AR" term="%22Evangeli%2C+Michael%22">Evangeli, Michael</searchLink><br /><searchLink fieldCode="AR" term="%22Goodin%2C+Burel+R%2E%22">Goodin, Burel R.</searchLink><br /><searchLink fieldCode="AR" term="%22Harding%2C+Richard%22">Harding, Richard</searchLink><br /><searchLink fieldCode="AR" term="%22Nkhoma%2C+Kennedy%22">Nkhoma, Kennedy</searchLink><br /><searchLink fieldCode="AR" term="%22Parker%2C+Romy%22">Parker, Romy</searchLink><br /><searchLink fieldCode="AR" term="%22Sabin%2C+Caroline%22">Sabin, Caroline</searchLink><br /><searchLink fieldCode="AR" term="%22Slawek%2C+Deepika%22">Slawek, Deepika</searchLink><br /><searchLink fieldCode="AR" term="%22Tsui%2C+Judith+I%2E%22">Tsui, Judith I.</searchLink><br /><searchLink fieldCode="AR" term="%22Merlin%2C+Jessica+S%2E%22">Merlin, Jessica S.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22AIDS+Care%22">AIDS Care</searchLink>. Sep2024, Vol. 36 Issue 9, p1291-1301. 11p.
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  Data: <searchLink fieldCode="DE" term="%22United+States%22">United States</searchLink>
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  Data: The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR = 8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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        Value: 10.1080/09540121.2024.2334358
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        Text: English
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      – SubjectFull: HIV infection risk factors
        Type: general
      – SubjectFull: Substance abuse treatment
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      – SubjectFull: Chronic pain treatment
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      – SubjectFull: United States
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