The role of fear as a barrier and facilitator to antiretroviral therapy initiation in Indonesia: insights from patients and providers.

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Title: The role of fear as a barrier and facilitator to antiretroviral therapy initiation in Indonesia: insights from patients and providers.
Authors: Hutahaean, Bona S. H., Stutterheim, Sarah E., Jonas, Kai J.
Source: AIDS Care. Jan2025, Vol. 37 Issue 1, p161-177. 17p.
Subjects: Fear, Social media, Antiretroviral agents, Qualitative research, Research funding, Interviewing, Statistical sampling, Sample size (Statistics), HIV infections, Descriptive statistics, Psychology of HIV-positive persons, Motivation (Psychology), Sound recordings, Thematic analysis, Attitudes of medical personnel, Research methodology, Anti-HIV agents, Interpersonal relations, Patients' attitudes, COVID-19, Disease progression
Geographic Terms: Indonesia
Abstract: Initiating antiretroviral therapy (ART) in Indonesia poses major challenges, with limited studies on specific ART initiation barriers and facilitators. Using a socioecological approach, we explored, through semi-structured interviews, the perspectives of 67 participants: 17 people with HIV not (yet) on ART, 30 people with HIV on treatment, and 20 HIV service providers (HSPs). Fears emerged as pervasive barriers to initiation encompassing, at the intrapersonal level, (irrational) fears of negative medical and non-medical consequences. At the health system level, fears were linked to concerns about bureaucracy and insufficient universal coverage. On a societal level, fears stemmed from prevalent myths, misinformation on social media, and the impact of COVID-19. Interestingly, fear also served as a facilitator to initiation. At the intrapersonal level, initiation was driven by a fear of deteriorating health or death due to AIDS-related conditions. At the interpersonal level, buddies and HSPs leveraged to motivate initiation. At the societal level, accurate yet fear-inducing information on social media stimulated initiation. Perspectives differed between people with HIV and HSP, with people with HIV emphasizing barriers on intrapersonal to health system levels, while HSP focused mostly on intrapersonal and interpersonal barriers, albeit recognizing the crucial role of health systems. [ABSTRACT FROM AUTHOR]
Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: The role of fear as a barrier and facilitator to antiretroviral therapy initiation in Indonesia: insights from patients and providers.
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  Data: <searchLink fieldCode="AR" term="%22Hutahaean%2C+Bona+S%2E+H%2E%22">Hutahaean, Bona S. H.</searchLink><br /><searchLink fieldCode="AR" term="%22Stutterheim%2C+Sarah+E%2E%22">Stutterheim, Sarah E.</searchLink><br /><searchLink fieldCode="AR" term="%22Jonas%2C+Kai+J%2E%22">Jonas, Kai J.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22AIDS+Care%22">AIDS Care</searchLink>. Jan2025, Vol. 37 Issue 1, p161-177. 17p.
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  Data: <searchLink fieldCode="DE" term="%22Fear%22">Fear</searchLink><br /><searchLink fieldCode="DE" term="%22Social+media%22">Social media</searchLink><br /><searchLink fieldCode="DE" term="%22Antiretroviral+agents%22">Antiretroviral agents</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Statistical+sampling%22">Statistical sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Sample+size+%28Statistics%29%22">Sample size (Statistics)</searchLink><br /><searchLink fieldCode="DE" term="%22HIV+infections%22">HIV infections</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+HIV-positive+persons%22">Psychology of HIV-positive persons</searchLink><br /><searchLink fieldCode="DE" term="%22Motivation+%28Psychology%29%22">Motivation (Psychology)</searchLink><br /><searchLink fieldCode="DE" term="%22Sound+recordings%22">Sound recordings</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+of+medical+personnel%22">Attitudes of medical personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Anti-HIV+agents%22">Anti-HIV agents</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22COVID-19%22">COVID-19</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+progression%22">Disease progression</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Indonesia%22">Indonesia</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Initiating antiretroviral therapy (ART) in Indonesia poses major challenges, with limited studies on specific ART initiation barriers and facilitators. Using a socioecological approach, we explored, through semi-structured interviews, the perspectives of 67 participants: 17 people with HIV not (yet) on ART, 30 people with HIV on treatment, and 20 HIV service providers (HSPs). Fears emerged as pervasive barriers to initiation encompassing, at the intrapersonal level, (irrational) fears of negative medical and non-medical consequences. At the health system level, fears were linked to concerns about bureaucracy and insufficient universal coverage. On a societal level, fears stemmed from prevalent myths, misinformation on social media, and the impact of COVID-19. Interestingly, fear also served as a facilitator to initiation. At the intrapersonal level, initiation was driven by a fear of deteriorating health or death due to AIDS-related conditions. At the interpersonal level, buddies and HSPs leveraged to motivate initiation. At the societal level, accurate yet fear-inducing information on social media stimulated initiation. Perspectives differed between people with HIV and HSP, with people with HIV emphasizing barriers on intrapersonal to health system levels, while HSP focused mostly on intrapersonal and interpersonal barriers, albeit recognizing the crucial role of health systems. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/09540121.2024.2414080
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 17
        StartPage: 161
    Subjects:
      – SubjectFull: Fear
        Type: general
      – SubjectFull: Social media
        Type: general
      – SubjectFull: Antiretroviral agents
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Statistical sampling
        Type: general
      – SubjectFull: Sample size (Statistics)
        Type: general
      – SubjectFull: HIV infections
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Psychology of HIV-positive persons
        Type: general
      – SubjectFull: Motivation (Psychology)
        Type: general
      – SubjectFull: Sound recordings
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Attitudes of medical personnel
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Anti-HIV agents
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Patients' attitudes
        Type: general
      – SubjectFull: COVID-19
        Type: general
      – SubjectFull: Disease progression
        Type: general
      – SubjectFull: Indonesia
        Type: general
    Titles:
      – TitleFull: The role of fear as a barrier and facilitator to antiretroviral therapy initiation in Indonesia: insights from patients and providers.
        Type: main
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            NameFull: Hutahaean, Bona S. H.
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            NameFull: Stutterheim, Sarah E.
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            NameFull: Jonas, Kai J.
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            – D: 01
              M: 01
              Text: Jan2025
              Type: published
              Y: 2025
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