'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia.
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| Title: | 'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia. |
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| Authors: | Grove, Rachel, Clapham, Hayley, Moodie, Tess, Gurrin, Sarah, Hall, Gabrielle |
| Source: | Journal of Autism & Developmental Disorders. Jul2025, Vol. 55 Issue 7, p2522-2538. 17p. |
| Subjects: | Gender-nonconforming people, Medical care research, Wounds & injuries, Health services accessibility, Research funding, Mental health, Gender identity, Sex crimes, Autism, Research evaluation, Transgender people, Interviewing, Work environment, Neurodiversity, Psychology of women, Descriptive statistics, Age distribution, Surveys, Priority (Philosophy), Research methodology, Asperger's syndrome, Needs assessment, Medical needs assessment, Social support, People with disabilities, Psychosocial factors, Friendship, Well-being, Evaluation |
| Geographic Terms: | Australia |
| Abstract: | Autistic girls, women and gender diverse people have specific needs that are underrepresented in research. Research priorities are often established by funding bodies, researchers, parents, carers and health professionals and may not meet the needs of the diverse Autistic community. This co-produced project aimed to identify what research would benefit the lives of Autistic girls, women and gender diverse people in Australia. We interviewed 47 Autistic girls, women and gender diverse people aged seven and above and obtained feedback from an additional 411 Autistic people through an online survey. Autistic young people identified six key research priorities including (1) better understanding and support at school, (2) understanding our experiences, strengths and challenges, (3) autism specific mental health support, (4) Autistic friendships and relationships, (5) experiences of gender diversity and (6) accommodations to make life easier for us. Eight key research priority areas were identified by Autistic adults including (1) understanding and supporting specific needs in adulthood, (2) experiences of trauma, abuse and sexual violence, (3) supporting mental health and wellbeing, (4) addressing barriers in healthcare, (5) understanding and supporting physical health needs, (6) addressing barriers in education and the workplace, (7) understanding the role of society, embracing neurodiversity and the importance of Autistic identity and (8) co-designing research and supports with Autistic people. We provide a discussion around the importance of focusing on these research priority areas in future autism research in Australia. Community Summary: This study was led by Autistic people. It aimed to develop research areas that are important to Autistic girls, women and gender diverse people aged seven and above in Australia. Autistic people aged between 7 and 17 identified six research areas they thought were important. These included being understood and supported at school, understanding their strengths and challenges, receiving mental health support, Autistic friendships and relationships, experiences of gender diversity and accommodations to make life easier for Autistic young people. Eight research areas were identified by Autistic adults, including understanding and supporting their needs in adulthood, experiences of trauma, abuse and sexual violence, supporting mental health and wellbeing, addressing barriers in healthcare, education and the workplace, understanding and supporting physical health needs, understanding the role of society, embracing neurodiversity and Autistic identity and co-designing research and supports with Autistic people. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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