Delphi consensus finding on paediatric-adult transition: results from the epilepsy transition working group of the italian league against epilepsy (LICE).
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| Title: | Delphi consensus finding on paediatric-adult transition: results from the epilepsy transition working group of the italian league against epilepsy (LICE). |
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| Authors: | Darra, F. (AUTHOR), Klaus, P. Biermann (AUTHOR), Audenino, D. (AUTHOR), Bisulli, F. (AUTHOR), Cossu, A. (AUTHOR), Elia, M. (AUTHOR), La Neve, A. (AUTHOR), Mancardi, M. (AUTHOR), Pastori, C. (AUTHOR), Proietti, J. (AUTHOR), Ragona, F. (AUTHOR), Rizzi, R. (AUTHOR), Rosati, A. (AUTHOR), Sciruicchio, V. (AUTHOR), Specchio, N. (AUTHOR), Stipa, C. (AUTHOR), Zanus, C. (AUTHOR), Villani, F. (AUTHOR) |
| Source: | Neurological Sciences. Sep2025, Vol. 46 Issue 9, p4601-4613. 13p. |
| Subjects: | Delphi method, Disease risk factors, Medical personnel, Medical care, Developmental disabilities |
| Abstract: | Purpose and rationale: The care for paediatric and transitional-age epilepsy patients has expanded significantly, addressing the diverse needs of patients with self-limiting to lifelong conditions. Approximately one-third of patients with childhood-onset epilepsy remain dependent on parental care, with transition influenced by factors such as seizure frequency, drug resistance, comorbidities, and developmental disabilities. The Italian League Against Epilepsy (LICE) initiated a Delphi consensus to establish common guidelines for effective transition practices. Methods: The consensus process included a literature review, thematic analysis, and iterative surveys using the Delphi Technique. The surveys involved 15 clinicians from LICE centres, forming the Epilepsy Transition Working Group (ETWG), and external experts. The surveys gathered expert opinions, with questions designed from evidence-based thematic areas. Results: The Delphi rounds revealed several findings. Effective pediatric-to-adult transition in epilepsy requires a multidisciplinary approach, including child and adolescent neuropsychiatrists, continuous training for healthcare providers, and active involvement of caregivers. The transition process should start at variable ages depending on the type of epilepsy and associated comorbidities, and it should mitigate risk factors and address psychological stress for patients and caregivers. Items related to transition tools did not reach consensus, highlighting the need for standardized screening questionnaires and measurable outcomes. Conclusions: This study emphasizes the necessity of an organized transition model involving various specialists and a tailored timeline. The consensus underscores the importance of caregiver involvement and unified educational curricula for all epileptologists to ensure effective care transition. The ETWG is building and improving a network of epilepsy centres to implement the organizational model derived from this study. [ABSTRACT FROM AUTHOR] |
| Copyright of Neurological Sciences is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 187622894 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Delphi consensus finding on paediatric-adult transition: results from the epilepsy transition working group of the italian league against epilepsy (LICE). – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Darra%2C+F%2E%22">Darra, F.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Klaus%2C+P%2E+Biermann%22">Klaus, P. Biermann</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Audenino%2C+D%2E%22">Audenino, D.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bisulli%2C+F%2E%22">Bisulli, F.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Cossu%2C+A%2E%22">Cossu, A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Elia%2C+M%2E%22">Elia, M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22La+Neve%2C+A%2E%22">La Neve, A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mancardi%2C+M%2E%22">Mancardi, M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pastori%2C+C%2E%22">Pastori, C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Proietti%2C+J%2E%22">Proietti, J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ragona%2C+F%2E%22">Ragona, F.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rizzi%2C+R%2E%22">Rizzi, R.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rosati%2C+A%2E%22">Rosati, A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sciruicchio%2C+V%2E%22">Sciruicchio, V.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Specchio%2C+N%2E%22">Specchio, N.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Stipa%2C+C%2E%22">Stipa, C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Zanus%2C+C%2E%22">Zanus, C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Villani%2C+F%2E%22">Villani, F.</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Neurological+Sciences%22">Neurological Sciences</searchLink>. Sep2025, Vol. 46 Issue 9, p4601-4613. 13p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Delphi+method%22">Delphi method</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+risk+factors%22">Disease risk factors</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+personnel%22">Medical personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose and rationale: The care for paediatric and transitional-age epilepsy patients has expanded significantly, addressing the diverse needs of patients with self-limiting to lifelong conditions. Approximately one-third of patients with childhood-onset epilepsy remain dependent on parental care, with transition influenced by factors such as seizure frequency, drug resistance, comorbidities, and developmental disabilities. The Italian League Against Epilepsy (LICE) initiated a Delphi consensus to establish common guidelines for effective transition practices. Methods: The consensus process included a literature review, thematic analysis, and iterative surveys using the Delphi Technique. The surveys involved 15 clinicians from LICE centres, forming the Epilepsy Transition Working Group (ETWG), and external experts. The surveys gathered expert opinions, with questions designed from evidence-based thematic areas. Results: The Delphi rounds revealed several findings. Effective pediatric-to-adult transition in epilepsy requires a multidisciplinary approach, including child and adolescent neuropsychiatrists, continuous training for healthcare providers, and active involvement of caregivers. The transition process should start at variable ages depending on the type of epilepsy and associated comorbidities, and it should mitigate risk factors and address psychological stress for patients and caregivers. Items related to transition tools did not reach consensus, highlighting the need for standardized screening questionnaires and measurable outcomes. Conclusions: This study emphasizes the necessity of an organized transition model involving various specialists and a tailored timeline. The consensus underscores the importance of caregiver involvement and unified educational curricula for all epileptologists to ensure effective care transition. The ETWG is building and improving a network of epilepsy centres to implement the organizational model derived from this study. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Neurological Sciences is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=187622894 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s10072-025-08166-y Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 13 StartPage: 4601 Subjects: – SubjectFull: Delphi method Type: general – SubjectFull: Disease risk factors Type: general – SubjectFull: Medical personnel Type: general – SubjectFull: Medical care Type: general – SubjectFull: Developmental disabilities Type: general Titles: – TitleFull: Delphi consensus finding on paediatric-adult transition: results from the epilepsy transition working group of the italian league against epilepsy (LICE). Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Darra, F. – PersonEntity: Name: NameFull: Klaus, P. Biermann – PersonEntity: Name: NameFull: Audenino, D. – PersonEntity: Name: NameFull: Bisulli, F. – PersonEntity: Name: NameFull: Cossu, A. – PersonEntity: Name: NameFull: Elia, M. – PersonEntity: Name: NameFull: La Neve, A. – PersonEntity: Name: NameFull: Mancardi, M. – PersonEntity: Name: NameFull: Pastori, C. – PersonEntity: Name: NameFull: Proietti, J. – PersonEntity: Name: NameFull: Ragona, F. – PersonEntity: Name: NameFull: Rizzi, R. – PersonEntity: Name: NameFull: Rosati, A. – PersonEntity: Name: NameFull: Sciruicchio, V. – PersonEntity: Name: NameFull: Specchio, N. – PersonEntity: Name: NameFull: Stipa, C. – PersonEntity: Name: NameFull: Zanus, C. – PersonEntity: Name: NameFull: Villani, F. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: Sep2025 Type: published Y: 2025 Identifiers: – Type: issn-print Value: 15901874 Numbering: – Type: volume Value: 46 – Type: issue Value: 9 Titles: – TitleFull: Neurological Sciences Type: main |
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