Tracing the Historical Roots of Health Inequity Among People With Intellectual and Developmental Disabilities in the United States: Impact of Models, Advocacy, Legislation, and International Context.

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Title: Tracing the Historical Roots of Health Inequity Among People With Intellectual and Developmental Disabilities in the United States: Impact of Models, Advocacy, Legislation, and International Context.
Authors: Krahn, Gloria L.
Source: American Journal of Public Health. 2026 Suppl 2, Vol. 116, pS84-S93. 10p.
Subjects: Health services accessibility, Disability laws, Institutional care, Medical laws, Attitudes toward disabilities, Developmental disabilities, Human rights, Social attitudes, Public health, Self advocacy, Biopsychosocial model, Nosology
Geographic Terms: United States
Abstract: The history of inequity for people with intellectual and developmental disabilities (IDD) in the United States is a compelling story of social perceptions of disabilities, advocacy, legislation, and international influences. Although my focus here is on health inequities, the contributing factors equally influenced where people with IDD lived, worked, and recreated. This article provides a public health perspective for viewing intertwining advances in models of disability, the power of family and self-advocacy, and US legislation to create infrastructures for community-based training, services, and support. It includes periods of inhumane treatment and gross neglect of people with disabilities. All are considered within an international context of increasing recognition of the human rights of people with disabilities. Key organizations pushing for improvements include Special Olympics and Arc of USA. Beginning with the 1800s when people with severe disabilities were often institutionalized, I document changes in prevailing models of disability, the movement to deinstitutionalize people with IDD to community settings, and the recent push to reconceptualize disability to promote true inclusion with full human rights. Current issues and future directions are outlined to advance health equity. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: The history of inequity for people with intellectual and developmental disabilities (IDD) in the United States is a compelling story of social perceptions of disabilities, advocacy, legislation, and international influences. Although my focus here is on health inequities, the contributing factors equally influenced where people with IDD lived, worked, and recreated. This article provides a public health perspective for viewing intertwining advances in models of disability, the power of family and self-advocacy, and US legislation to create infrastructures for community-based training, services, and support. It includes periods of inhumane treatment and gross neglect of people with disabilities. All are considered within an international context of increasing recognition of the human rights of people with disabilities. Key organizations pushing for improvements include Special Olympics and Arc of USA. Beginning with the 1800s when people with severe disabilities were often institutionalized, I document changes in prevailing models of disability, the movement to deinstitutionalize people with IDD to community settings, and the recent push to reconceptualize disability to promote true inclusion with full human rights. Current issues and future directions are outlined to advance health equity. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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      – Type: doi
        Value: 10.2105/AJPH.2026.308466
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      – Code: eng
        Text: English
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        PageCount: 10
        StartPage: S84
    Subjects:
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Disability laws
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      – SubjectFull: Institutional care
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      – SubjectFull: Medical laws
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      – SubjectFull: Attitudes toward disabilities
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      – SubjectFull: Developmental disabilities
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      – SubjectFull: Human rights
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      – SubjectFull: Social attitudes
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      – SubjectFull: Public health
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      – SubjectFull: Self advocacy
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      – SubjectFull: Biopsychosocial model
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      – SubjectFull: Nosology
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      – SubjectFull: United States
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    Titles:
      – TitleFull: Tracing the Historical Roots of Health Inequity Among People With Intellectual and Developmental Disabilities in the United States: Impact of Models, Advocacy, Legislation, and International Context.
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              Text: 2026 Suppl 2
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