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Developing Culturally Responsive Approaches With Southeast Asian American Families Experiencing Developmental Disabilities.

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Title: Developing Culturally Responsive Approaches With Southeast Asian American Families Experiencing Developmental Disabilities.
Authors: Baker, Dian L., Miller, Elizabeth, Dang, Michelle T., Chiem-Seng Yaangh, Hansen, Robin L.
Source: Pediatrics. Dec2010 Supplement 3, Vol. 126 Issue 3, pS146-S150. 5p.
Subjects: Families & psychology, Asians, Developmental disabilities, Focus groups, Health services accessibility, Health insurance, Interviewing, Medical quality control, Research, Sound recordings, Special education, Communication barriers, Thematic analysis, Cultural competence
Abstract: OBJECTIVE: Southeast Asian American families are underrepresented among recipients of special education and social services for people with developmental disabilities. Our aims were to use a community-based participatory research approach to examine Hmong and Mien families' perceptions of developmental disabilities and understand barriers to and facilitators of service provision among families experiencing developmental disabilities. We describe here a case study of a successful attempt to engage marginalized and underserved communities to understand their needs to improve access and services for persons with developmental disabilities. METHODS: We conducted 2 focus groups with 11 key informants and 1 focus group with 10 family members of persons with developmental disabilities, as well as indepth interviews with 3 shamans. Using a thematic analysis approach, we coded notes and transcripts to assess community members' understanding of developmental disabilities, experiences negotiating educational and health care systems, and barriers to high-quality care. RESULTS: A predominant theme was the perception that reliance on governmental support services is not appropriate. Common barriers identified included lack of accurate information, language difficulties, lack of trust, and limited outreach. These perceptions and barriers, combined with limited access to services, interfere with community acceptance and use of available support services. Despite these barriers, participants indicated that with education, outreach, and culturally responsive support, families would likely accept services. CONCLUSIONS: Community-based participatory methods are effective for eliciting root causes of health inequities in marginalized communities. Outreach to community-based organizations and an inclusive research practice identified social and cultural reasons for low service uptake and provided a pathway for the community to improve services for persons with developmental disabilities. [ABSTRACT FROM AUTHOR]
Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Developing Culturally Responsive Approaches With Southeast Asian American Families Experiencing Developmental Disabilities.
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  Data: <searchLink fieldCode="AR" term="%22Baker%2C+Dian+L%2E%22">Baker, Dian L.</searchLink><br /><searchLink fieldCode="AR" term="%22Miller%2C+Elizabeth%22">Miller, Elizabeth</searchLink><br /><searchLink fieldCode="AR" term="%22Dang%2C+Michelle+T%2E%22">Dang, Michelle T.</searchLink><br /><searchLink fieldCode="AR" term="%22Chiem-Seng+Yaangh%22">Chiem-Seng Yaangh</searchLink><br /><searchLink fieldCode="AR" term="%22Hansen%2C+Robin+L%2E%22">Hansen, Robin L.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Pediatrics%22">Pediatrics</searchLink>. Dec2010 Supplement 3, Vol. 126 Issue 3, pS146-S150. 5p.
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  Data: <searchLink fieldCode="DE" term="%22Families+%26+psychology%22">Families & psychology</searchLink><br /><searchLink fieldCode="DE" term="%22Asians%22">Asians</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Health+insurance%22">Health insurance</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+quality+control%22">Medical quality control</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Sound+recordings%22">Sound recordings</searchLink><br /><searchLink fieldCode="DE" term="%22Special+education%22">Special education</searchLink><br /><searchLink fieldCode="DE" term="%22Communication+barriers%22">Communication barriers</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+competence%22">Cultural competence</searchLink>
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  Data: OBJECTIVE: Southeast Asian American families are underrepresented among recipients of special education and social services for people with developmental disabilities. Our aims were to use a community-based participatory research approach to examine Hmong and Mien families' perceptions of developmental disabilities and understand barriers to and facilitators of service provision among families experiencing developmental disabilities. We describe here a case study of a successful attempt to engage marginalized and underserved communities to understand their needs to improve access and services for persons with developmental disabilities. METHODS: We conducted 2 focus groups with 11 key informants and 1 focus group with 10 family members of persons with developmental disabilities, as well as indepth interviews with 3 shamans. Using a thematic analysis approach, we coded notes and transcripts to assess community members' understanding of developmental disabilities, experiences negotiating educational and health care systems, and barriers to high-quality care. RESULTS: A predominant theme was the perception that reliance on governmental support services is not appropriate. Common barriers identified included lack of accurate information, language difficulties, lack of trust, and limited outreach. These perceptions and barriers, combined with limited access to services, interfere with community acceptance and use of available support services. Despite these barriers, participants indicated that with education, outreach, and culturally responsive support, families would likely accept services. CONCLUSIONS: Community-based participatory methods are effective for eliciting root causes of health inequities in marginalized communities. Outreach to community-based organizations and an inclusive research practice identified social and cultural reasons for low service uptake and provided a pathway for the community to improve services for persons with developmental disabilities. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=56600738
RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1542/peds.2010-1466I
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      – Code: eng
        Text: English
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      Pagination:
        PageCount: 5
        StartPage: S146
    Subjects:
      – SubjectFull: Families & psychology
        Type: general
      – SubjectFull: Asians
        Type: general
      – SubjectFull: Developmental disabilities
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Health insurance
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Medical quality control
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      – SubjectFull: Research
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      – SubjectFull: Sound recordings
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      – SubjectFull: Special education
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      – SubjectFull: Communication barriers
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      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Cultural competence
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    Titles:
      – TitleFull: Developing Culturally Responsive Approaches With Southeast Asian American Families Experiencing Developmental Disabilities.
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            NameFull: Baker, Dian L.
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            NameFull: Dang, Michelle T.
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            NameFull: Chiem-Seng Yaangh
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            NameFull: Hansen, Robin L.
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              Text: Dec2010 Supplement 3
              Type: published
              Y: 2010
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              Value: 126
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