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Profiles of family needs of children and youth with cerebral palsy.

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Title: Profiles of family needs of children and youth with cerebral palsy.
Authors: Almasri, N. (AUTHOR), Palisano, R. J. (AUTHOR), Dunst, C. (AUTHOR), Chiarello, L. A. (AUTHOR), O'Neil, M. E. (AUTHOR), Polansky, M. (AUTHOR)
Source: Child: Care, Health & Development. Nov2012, Vol. 38 Issue 6, p798-806. 9p. 3 Charts, 3 Graphs.
Subjects: Analysis of variance, Children with cerebral palsy, Chi-squared test, Cluster analysis (Statistics), Family assessment, Family medicine, Health counseling, Movement disorders, Needs assessment, Questionnaires, Research funding, Scales (Weighing instruments), Data analysis software, Descriptive statistics
Geographic Terms: Jordan
Abstract: Background To identify profiles of family needs of families of children and youth with cerebral palsy (CP), and determine whether profile membership is related to child, family and service characteristics. Methods Participants were mostly mothers (80%) of 579 children and youth with CP. A family member completed modified version of the Family Needs Survey and questionnaires about their child, family and services. Research assistants determined the Gross Motor Function Classification System levels. K-means cluster analysis identified profiles of needs. Cluster membership was analysed to examine differences in clusters based on selected characteristics. Results Four profiles of needs were identified: Low needs, Needs related to community and financial resources, Needs related to child health condition and High needs. Profile membership was differentiated based on child/youth gross motor function, adaptive behaviour, family relationships, family income, access and effort to co-ordinate services. Conclusion Despite heterogeneity among individuals with CP and their families, four profiles of family needs were identified. In total, 51% of families had low needs suggesting that they are effectively managing their children's health conditions while 11% of families had high needs that may require high levels of services and supports. Service providers are encouraged to partner with families, provide anticipatory guidance and co-ordinate services. [ABSTRACT FROM AUTHOR]
Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: <searchLink fieldCode="AR" term="%22Almasri%2C+N%2E%22">Almasri, N.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Palisano%2C+R%2E+J%2E%22">Palisano, R. J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dunst%2C+C%2E%22">Dunst, C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chiarello%2C+L%2E+A%2E%22">Chiarello, L. A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22O'Neil%2C+M%2E+E%2E%22">O'Neil, M. E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Polansky%2C+M%2E%22">Polansky, M.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. Nov2012, Vol. 38 Issue 6, p798-806. 9p. 3 Charts, 3 Graphs.
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  Data: Background To identify profiles of family needs of families of children and youth with cerebral palsy (CP), and determine whether profile membership is related to child, family and service characteristics. Methods Participants were mostly mothers (80%) of 579 children and youth with CP. A family member completed modified version of the Family Needs Survey and questionnaires about their child, family and services. Research assistants determined the Gross Motor Function Classification System levels. K-means cluster analysis identified profiles of needs. Cluster membership was analysed to examine differences in clusters based on selected characteristics. Results Four profiles of needs were identified: Low needs, Needs related to community and financial resources, Needs related to child health condition and High needs. Profile membership was differentiated based on child/youth gross motor function, adaptive behaviour, family relationships, family income, access and effort to co-ordinate services. Conclusion Despite heterogeneity among individuals with CP and their families, four profiles of family needs were identified. In total, 51% of families had low needs suggesting that they are effectively managing their children's health conditions while 11% of families had high needs that may require high levels of services and supports. Service providers are encouraged to partner with families, provide anticipatory guidance and co-ordinate services. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1111/j.1365-2214.2011.01331.x
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        Text: English
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    Subjects:
      – SubjectFull: Analysis of variance
        Type: general
      – SubjectFull: Children with cerebral palsy
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      – SubjectFull: Chi-squared test
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      – SubjectFull: Cluster analysis (Statistics)
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      – SubjectFull: Family assessment
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      – SubjectFull: Health counseling
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      – SubjectFull: Movement disorders
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      – SubjectFull: Needs assessment
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      – SubjectFull: Questionnaires
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              Text: Nov2012
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