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Participation in a national diagnostic research study: assessing the patient experience.

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Title:	Participation in a national diagnostic research study: assessing the patient experience.
Authors:	Rosenfeld, Lindsay E.^1,2 (AUTHOR), LeBlanc, Kimberly¹ (AUTHOR), Nagy, Anna¹ (AUTHOR), Ego, Braeden K.^1,3 (AUTHOR), The Undiagnosed Diseases Network (AUTHOR), Acosta, Maria T. (AUTHOR), Adam, Margaret (AUTHOR), Adams, David R. (AUTHOR), Alvarez, Raquel L. (AUTHOR), Alvey, Justin (AUTHOR), Amendola, Laura (AUTHOR), Andrews, Ashley (AUTHOR), Ashley, Euan A. (AUTHOR), Bacino, Carlos A. (AUTHOR), Bademci, Guney (AUTHOR), Balasubramanyam, Ashok (AUTHOR), Baldridge, Dustin (AUTHOR), Bale, Jim (AUTHOR), Bamshad, Michael (AUTHOR), Barbouth, Deborah (AUTHOR)
Source:	Orphanet Journal of Rare Diseases. 4/10/2023, Vol. 18 Issue 1, p1-10. 10p.
Database:	Academic Search Ultimate
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Description
ISSN:	17501172
DOI:	10.1186/s13023-023-02695-5