Participation in a national diagnostic research study: assessing the patient experience.
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| Title: | Participation in a national diagnostic research study: assessing the patient experience. |
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| Authors: | Rosenfeld, Lindsay E.1,2 (AUTHOR), LeBlanc, Kimberly1 (AUTHOR), Nagy, Anna1 (AUTHOR), Ego, Braeden K.1,3 (AUTHOR), The Undiagnosed Diseases Network (AUTHOR), Acosta, Maria T. (AUTHOR), Adam, Margaret (AUTHOR), Adams, David R. (AUTHOR), Alvarez, Raquel L. (AUTHOR), Alvey, Justin (AUTHOR), Amendola, Laura (AUTHOR), Andrews, Ashley (AUTHOR), Ashley, Euan A. (AUTHOR), Bacino, Carlos A. (AUTHOR), Bademci, Guney (AUTHOR), Balasubramanyam, Ashok (AUTHOR), Baldridge, Dustin (AUTHOR), Bale, Jim (AUTHOR), Bamshad, Michael (AUTHOR), Barbouth, Deborah (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 4/10/2023, Vol. 18 Issue 1, p1-10. 10p. |
| Database: | Academic Search Ultimate |
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| FullText | Links: – Type: pdflink Text: Availability: 1 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 162991734 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=162991734 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-023-02695-5 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 10 StartPage: 1 Titles: – TitleFull: Participation in a national diagnostic research study: assessing the patient experience. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Rosenfeld, Lindsay E. – PersonEntity: Name: NameFull: LeBlanc, Kimberly – PersonEntity: Name: NameFull: Nagy, Anna – PersonEntity: Name: NameFull: Ego, Braeden K. – PersonEntity: Name: NameFull: The Undiagnosed Diseases Network – PersonEntity: Name: NameFull: Acosta, Maria T. – PersonEntity: Name: NameFull: Adam, Margaret – PersonEntity: Name: NameFull: Adams, David R. – PersonEntity: Name: NameFull: Alvarez, Raquel L. – PersonEntity: Name: NameFull: Alvey, Justin – PersonEntity: Name: NameFull: Amendola, Laura – PersonEntity: Name: NameFull: Andrews, Ashley – PersonEntity: Name: NameFull: Ashley, Euan A. – PersonEntity: Name: NameFull: Bacino, Carlos A. – PersonEntity: Name: NameFull: Bademci, Guney – PersonEntity: Name: NameFull: Balasubramanyam, Ashok – PersonEntity: Name: NameFull: Baldridge, Dustin – PersonEntity: Name: NameFull: Bale, Jim – PersonEntity: Name: NameFull: Bamshad, Michael – PersonEntity: Name: NameFull: Barbouth, Deborah IsPartOfRelationships: – BibEntity: Dates: – D: 10 M: 04 Text: 4/10/2023 Type: published Y: 2023 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 18 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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