Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services.
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| Title: | Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services. |
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| Authors: | Wainstein, Tasha1,2 (AUTHOR) tasha.wainstein@bcchr.ca, Boelman, Cyrus3 (AUTHOR), Ens, Connie4 (AUTHOR), Gibson, William T.1,2 (AUTHOR), Gregory-Evans, Kevin1,5 (AUTHOR), Kolawole, Olubayo U.5 (AUTHOR), Marshall, Sheila K.6,7 (AUTHOR), Selby, Kathryn3 (AUTHOR), Knoppers, Bartha8 (AUTHOR), Lynd, Larry D.9,10 (AUTHOR), Dey, Alivia2,11 (AUTHOR), Adam, Shelin1,2 (AUTHOR), Bansback, Nick12,13 (AUTHOR), Birch, Patricia1,2 (AUTHOR), Clarke, Lorne1 (AUTHOR), Dragojlovic, Nick14 (AUTHOR), Friedman, Jan1,2 (AUTHOR), Lambert, Debby15 (AUTHOR), Pullman, Daryl16 (AUTHOR), Virani, Alice1,11 (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 8/21/2025, Vol. 20 Issue 1, p1-20. 20p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-025-03968-x |
