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Data Sharing Experience, Guidance, and Resources From the Rare Diseases Clinical Research Network (RDCRN).

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Title: Data Sharing Experience, Guidance, and Resources From the Rare Diseases Clinical Research Network (RDCRN).
Authors: Schwendeman, Elaine1 (AUTHOR), Kaminski, Henry J.2 (AUTHOR), Vanderver, Adeline3,4 (AUTHOR), Wagner, Michael1,5,6 (AUTHOR), King, Eileen1,6 (AUTHOR), Benatar, Michael (AUTHOR), Crosby, Lori E. (AUTHOR), Kretzler, Matthias (AUTHOR), Lumsden, Joanne (AUTHOR), Merkel, Peter A. (AUTHOR), Morris, Jill (AUTHOR), Ruediger, Susan (AUTHOR), Urv, Tiina (AUTHOR), Macaluso, Maurizio1,6 (AUTHOR) maurizio.macaluso@cchmc.org
Source: CTS: Clinical & Translational Science. Sep2025, Vol. 18 Issue 9, p1-10. 10p.
Database: Academic Search Ultimate
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ISSN:17528054
DOI:10.1111/cts.70340