Examining Support Networks Among Individuals With Intellectual and Developmental Disabilities.
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| Title: | Examining Support Networks Among Individuals With Intellectual and Developmental Disabilities. |
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| Authors: | Best, Megan1 (AUTHOR) Meghan.burke@vanderbilt.edu, Burke, Meghan M.2 (AUTHOR), Arnold, Catherine K.3 (AUTHOR) |
| Source: | Intellectual & Developmental Disabilities. Jun2025, Vol. 63 Issue 3, p216-229. 14p. |
| Subject Terms: | *Social networks, *Developmental disabilities, *Intellectual disabilities, *Down syndrome, *Caregivers |
| Abstract: | Understanding the support networks of individuals with intellectual and developmental disabilities (IDD) is important given that adults with IDD are outliving their parents—i.e., their primary caregivers. We surveyed 601 adult siblings of individuals with IDD to identify: Who provides caregiving support to adults with IDD? Do the types of caregiving support vary in relation to the support network role? To what extent do individual, sibling, and family characteristics correlate with the size of the support network? On average, individuals with IDD possessed small support networks, with most support networks comprised of family members (primarily parents). Individuals with Down syndrome (versus autism) reported larger support networks. Implications for research, practice, and policy are discussed. [ABSTRACT FROM AUTHOR] |
| Copyright of Intellectual & Developmental Disabilities is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Education Research Complete |
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| Abstract: | Understanding the support networks of individuals with intellectual and developmental disabilities (IDD) is important given that adults with IDD are outliving their parents—i.e., their primary caregivers. We surveyed 601 adult siblings of individuals with IDD to identify: Who provides caregiving support to adults with IDD? Do the types of caregiving support vary in relation to the support network role? To what extent do individual, sibling, and family characteristics correlate with the size of the support network? On average, individuals with IDD possessed small support networks, with most support networks comprised of family members (primarily parents). Individuals with Down syndrome (versus autism) reported larger support networks. Implications for research, practice, and policy are discussed. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 19349491 |
| DOI: | 10.1352/1934-9556-63.3.216 |
