Fetal alcohol spectrum disorder diagnostic clinics in Canada: "It wouldn't happen if nobody wanted it to happen".
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| Title: | Fetal alcohol spectrum disorder diagnostic clinics in Canada: "It wouldn't happen if nobody wanted it to happen". |
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| Authors: | Harding, Kelly D.1,2,3 (AUTHOR) kelly.harding@canfasd.ca, Flannigan, Katherine3,4 (AUTHOR), Burns, Colleen5 (AUTHOR), Unsworth, Kathy3 (AUTHOR), McFarlane, Audrey3 (AUTHOR) |
| Source: | Journal of Intellectual & Developmental Disability. Mar2026, Vol. 51 Issue 1, p115-125. 11p. |
| Subject Terms: | *Health services accessibility, *Policy sciences, *Human services programs, *Qualitative research, *Interprofessional relations, *Fetal alcohol syndrome, *Research methodology, *Theory of knowledge, *Comparative studies, Medical care use, Interviewing, Descriptive statistics, Mentoring, Judgment sampling, Thematic analysis, Public relations, Maternal-fetal exchange, Medical needs assessment, Health care teams |
| Geographic Terms: | Canada |
| Abstract: | Background: We address the question: If you wanted to start a fetal alcohol spectrum disorder (FASD) diagnostic clinic, what would you need to do, think about, and plan for, from a policy perspective? Our aims were to understand how clinics are developed and established and the key factors that facilitate their success. Method: Within a pragmatist epistemology, we conducted a basic qualitative study using semistructured interviews. Interviews were conducted with 12 key informants from 10 diagnostic clinics. Data were analysed using iterative thematic analysis. Results: We derived five themes pertaining to our objectives: (i) listening and responding to your community; (ii) community buy-in and practical steps; (iii) multidisciplinary team trust, respect, and collaboration; (iv) the clinic coordinator; and (v) promoting uniqueness and learning from each other. Conclusions: Our findings demonstrated the importance of local, community-based planning, team cohesion, and opportunities for mentorship in the development of new FASD clinical services. [ABSTRACT FROM AUTHOR] |
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| Database: | Education Research Complete |
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| Abstract: | Background: We address the question: If you wanted to start a fetal alcohol spectrum disorder (FASD) diagnostic clinic, what would you need to do, think about, and plan for, from a policy perspective? Our aims were to understand how clinics are developed and established and the key factors that facilitate their success. Method: Within a pragmatist epistemology, we conducted a basic qualitative study using semistructured interviews. Interviews were conducted with 12 key informants from 10 diagnostic clinics. Data were analysed using iterative thematic analysis. Results: We derived five themes pertaining to our objectives: (i) listening and responding to your community; (ii) community buy-in and practical steps; (iii) multidisciplinary team trust, respect, and collaboration; (iv) the clinic coordinator; and (v) promoting uniqueness and learning from each other. Conclusions: Our findings demonstrated the importance of local, community-based planning, team cohesion, and opportunities for mentorship in the development of new FASD clinical services. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 13668250 |
| DOI: | 10.3109/13668250.2025.2508619 |
