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'Peas in a Pod': Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults

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Bibliographic Details
Title: 'Peas in a Pod': Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults
Language: English
Authors: Lilley, Rozanna (ORCID 0000-0001-6143-8805), Lawson, Wenn, Hall, Gabrielle, Mahony, Joanne, Clapham, Hayley, Heyworth, Melanie, Arnold, Samuel, Trollor, Julian, Yudell, Michael, Pellicano, Elizabeth
Source: Journal of Autism and Developmental Disorders. Mar 2023 53(3):1146-1161.
Availability: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 16
Publication Date: 2023
Document Type: Journal Articles
Reports - Research
Descriptors: Foreign Countries, Oral History, Autism Spectrum Disorders, Adults, Biographies, Clinical Diagnosis, Self Concept, Family (Sociological Unit), Community
Geographic Terms: Australia
DOI: 10.1007/s10803-022-05667-z
ISSN: 0162-3257
1573-3432
Abstract: In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
Abstractor: As Provided
Entry Date: 2023
Accession Number: EJ1368726
Database: ERIC
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Abstract:In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
ISSN:0162-3257
1573-3432
DOI:10.1007/s10803-022-05667-z