Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals with Angelman Syndrome
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| Title: | Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals with Angelman Syndrome |
|---|---|
| Language: | English |
| Authors: | Zigler, Christina K., Lin, Li, McFatrich, Molly, Lucas, Nicole, Gordon, Kelly L., Jones, Harrison N., Berent, Allyson, Panagoulias, Jennifer, Evans, Paula, Reeve, Bryce B. |
| Source: | American Journal on Intellectual and Developmental Disabilities. May 2023 128(3):204-218. |
| Availability: | American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd |
| Peer Reviewed: | Y |
| Page Count: | 15 |
| Publication Date: | 2023 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Genetic Disorders, Test Validity, Observation, Communication Skills, Measures (Individuals), Test Reliability |
| ISSN: | 1944-7515 1944-7558 |
| Abstract: | There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of developing a measure that could be administered to caregivers directly without the need for a certified administrator for use in clinical trials. To refine the draft measure, we conducted two rounds of cognitive interviews with 24 caregivers and a quantitative study including 249 caregivers. The results from both studies support the overall content validity, construct validity, and the reliability of the ORCA measure for individuals with AS[greater than or equal to]2 years old for use in research contexts. Future work should explore the responsiveness of ORCA measures to changes over time in a diverse sample. |
| Abstractor: | As Provided |
| Entry Date: | 2023 |
| Access URL: | https://meridian.allenpress.com/ajidd/article-abstract/128/3/204/492586/Validation-of-the-Observer-Reported-Communication?redirectedFrom=fulltext |
| Accession Number: | EJ1387041 |
| Database: | ERIC |
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| Abstract: | There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of developing a measure that could be administered to caregivers directly without the need for a certified administrator for use in clinical trials. To refine the draft measure, we conducted two rounds of cognitive interviews with 24 caregivers and a quantitative study including 249 caregivers. The results from both studies support the overall content validity, construct validity, and the reliability of the ORCA measure for individuals with AS[greater than or equal to]2 years old for use in research contexts. Future work should explore the responsiveness of ORCA measures to changes over time in a diverse sample. |
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| ISSN: | 1944-7515 1944-7558 |
