Psychological Adjustment of Siblings of Children with Prader-Willi Syndrome
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| Title: | Psychological Adjustment of Siblings of Children with Prader-Willi Syndrome |
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| Language: | English |
| Authors: | Bennett Murphy, Laura, Thornton, Jane, Thornton, Emma |
| Source: | Journal of Intellectual & Developmental Disability. 2023 48(2):196-205. |
| Availability: | Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals |
| Peer Reviewed: | Y |
| Page Count: | 10 |
| Publication Date: | 2023 |
| Sponsoring Agency: | US Department of Health and Human Services, Administration for Community Living (ACL) |
| Contract Number: | 1901UTSCDD02 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Siblings, Genetic Disorders, Disabilities, Children, Adjustment (to Environment), Psychological Patterns, Anxiety, Depression (Psychology), Quality of Life, Family Environment, Symptoms (Individual Disorders), Posttraumatic Stress Disorder, Family Characteristics, Well Being |
| Assessment and Survey Identifiers: | Positive and Negative Affect Schedule, Family Environment Scale |
| DOI: | 10.3109/13668250.2022.2132630 |
| ISSN: | 1366-8250 1469-9532 |
| Abstract: | Background: Siblings of children with Prader-Willi syndrome (PWS) may be at elevated risk for poor psychological adjustment (Mazaheri, M. M., Rae-Seebach, R. D., Preston, H. E., Schmidt, M., Kountz-Edwards, S., Field, N., Cassidy, S., Packman, Wet al. (2013). The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment. "Journal of Intellectual Disability Research," 57(9), 861-873. ; O'Neill, L. P., & Murray, L. E. (2016). Anxiety and depression symptomatology in adult siblings of individuals with different developmental disability diagnoses. "Research in Developmental Disabilities," 51, 116-125. ). The current study describes psychological distress and symptoms of post-traumatic stress disorder (PTSD) in non-disabled siblings. Method: Fifty-eight siblings and 86 parents participated. Results: Parents reported that almost 40% of siblings had psychological symptoms that exceeded clinical cut-off scores; 58.9% of siblings reported symptoms of PTSD that exceeded diagnostic cut-off scores. Symptoms were significantly related to family organisation and control per parent report and negative affect per sibling report. Conclusion: Growing up with a sibling with PWS may challenge adaptive resources of non-disabled siblings, leaving them vulnerable to psychological distress. Those who care for children with PWS are in a unique position to educate families about the potential vulnerability of non-disabled siblings. We encourage routine screening and support for affected family members, especially siblings. |
| Abstractor: | As Provided |
| Entry Date: | 2023 |
| Accession Number: | EJ1388115 |
| Database: | ERIC |
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| Abstract: | Background: Siblings of children with Prader-Willi syndrome (PWS) may be at elevated risk for poor psychological adjustment (Mazaheri, M. M., Rae-Seebach, R. D., Preston, H. E., Schmidt, M., Kountz-Edwards, S., Field, N., Cassidy, S., Packman, Wet al. (2013). The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment. "Journal of Intellectual Disability Research," 57(9), 861-873. ; O'Neill, L. P., & Murray, L. E. (2016). Anxiety and depression symptomatology in adult siblings of individuals with different developmental disability diagnoses. "Research in Developmental Disabilities," 51, 116-125. ). The current study describes psychological distress and symptoms of post-traumatic stress disorder (PTSD) in non-disabled siblings. Method: Fifty-eight siblings and 86 parents participated. Results: Parents reported that almost 40% of siblings had psychological symptoms that exceeded clinical cut-off scores; 58.9% of siblings reported symptoms of PTSD that exceeded diagnostic cut-off scores. Symptoms were significantly related to family organisation and control per parent report and negative affect per sibling report. Conclusion: Growing up with a sibling with PWS may challenge adaptive resources of non-disabled siblings, leaving them vulnerable to psychological distress. Those who care for children with PWS are in a unique position to educate families about the potential vulnerability of non-disabled siblings. We encourage routine screening and support for affected family members, especially siblings. |
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| ISSN: | 1366-8250 1469-9532 |
| DOI: | 10.3109/13668250.2022.2132630 |
