'Give People More Time and Take the Time to Explain Things Properly': Cervical Screening Experiences of People with Intellectual Disability
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| Title: | 'Give People More Time and Take the Time to Explain Things Properly': Cervical Screening Experiences of People with Intellectual Disability |
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| Language: | English |
| Authors: | Iva Strnadová (ORCID |
| Source: | Journal of Applied Research in Intellectual Disabilities. 2026 39(2). |
| Availability: | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Peer Reviewed: | Y |
| Page Count: | 14 |
| Publication Date: | 2026 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Screening Tests, Cancer, Intellectual Disability, Foreign Countries, Trauma Informed Approach, Adults, Health Services, Surgery, Informed Consent, Access to Information, Females, Barriers, Health Education, Information Sources, Health Materials, Readability |
| Geographic Terms: | Australia |
| DOI: | 10.1111/jar.70206 |
| ISSN: | 1360-2322 1468-3148 |
| Abstract: | Background: People with intellectual disability have 70% lower cervical screening participation rates. Limited research has captured their experiences, particularly in Australia. Methods: This qualitative study used inclusive co-production and trauma-informed approaches. Eleven people with intellectual disability (aged 26-65) from New South Wales participated in semi-structured interviews and arts-based body mapping, analysed using reflective thematic analysis. Findings: Four themes emerged: (1) healthcare interactions ranged from empowering to traumatic, with communication failures and rushed procedures; (2) tensions around informed consent and support roles; (3) gaps in accessible information and systematic reminders and (4) how past trauma and competing health priorities influenced screening. Participants recommended Easy Read materials, adequate appointment time, trauma-informed care and genuine choice in healthcare decisions. Conclusions: Women with intellectual disability encounter systematic barriers to cervical screening encompassing communication failures, inadequate consent and lack of trauma-informed care. Their recommendations provide actionable solutions for healthcare reform. |
| Abstractor: | As Provided |
| Entry Date: | 2026 |
| Accession Number: | EJ1504031 |
| Database: | ERIC |
| Abstract: | Background: People with intellectual disability have 70% lower cervical screening participation rates. Limited research has captured their experiences, particularly in Australia. Methods: This qualitative study used inclusive co-production and trauma-informed approaches. Eleven people with intellectual disability (aged 26-65) from New South Wales participated in semi-structured interviews and arts-based body mapping, analysed using reflective thematic analysis. Findings: Four themes emerged: (1) healthcare interactions ranged from empowering to traumatic, with communication failures and rushed procedures; (2) tensions around informed consent and support roles; (3) gaps in accessible information and systematic reminders and (4) how past trauma and competing health priorities influenced screening. Participants recommended Easy Read materials, adequate appointment time, trauma-informed care and genuine choice in healthcare decisions. Conclusions: Women with intellectual disability encounter systematic barriers to cervical screening encompassing communication failures, inadequate consent and lack of trauma-informed care. Their recommendations provide actionable solutions for healthcare reform. |
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| ISSN: | 1360-2322 1468-3148 |
| DOI: | 10.1111/jar.70206 |
