Deseos cumplidos al final de la vida del niño/a: construcción de significados desde la perspectiva de las familias. Un estudio cualitativo.
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| Title: | Deseos cumplidos al final de la vida del niño/a: construcción de significados desde la perspectiva de las familias. Un estudio cualitativo. |
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| Alternate Title: | Fulfilled wishes at the end of a child's life: Meaning construction from the families' perspective. A qualitative studys. |
| Authors: | Chocarrro González, Lourdes1 lourdes.chocarro@oberon.es, González Villanueva, Purificación2 purigonzalez57@gmail.com, Martínez Monroy, Aurora3 aurora@porqueviven.org, Herrero, Araceli4 araceli.herrero@fundacion38grados.org, Martínez-Mena, María5 maria.martinezmena@fundacion38grados.org, Ramos, Rocío5 rocio.ramos@fundacion38grados.org, Martino Alba, Ricardo6 ricardojavier.martino@salud.madrid.org |
| Source: | Psicooncologia. jul-dic2025, Vol. 22 Issue 2, p209-223. 15p. |
| Subjects: | PALLIATIVE treatment, QUALITATIVE research, PARENT attitudes, PSYCHOLOGICAL well-being, PEDIATRICS, PARENTS of children with disabilities, GRIEF, GROUNDED theory, COMPARATIVE studies, PSYCHOSOCIAL factors, ADVANCE directives (Medical care) |
| Abstract (English): | Introduction: Granting the wishes of an adolescent child in their final stages of life can be regarded as a valuable tool of care within Pediatric Palliative Care during the parents' grieving process. This intervention helps to improve the child's quality of life and provides a meaningful resource for families during their farewell. Aim: Exploring the parents' perception of their deceased child's wish-granted in the context of Pediatric Palliative Care. Methods: A qualitative study from Grounded Theory. Participants were parents of children whose wishes were granted by Fundación 38 Grados (Madrid) and whose children were already deceased at the time of the study. Data was analyzed via constant comparison method until identification of key concepts and the core category were reached. Results: Four main categories arise: 1) Wish-granting opens doors; 2) it positions the family; 3) Wanting to give back what they have received; 4) experiencing wish-granting.12 dimensions and a core category rose from those categories. Conclusions: Wish-granting has been an intense experience for parents, who look back on it positively and it drives them now to help others who have lost their children. This intervention has provided meaningful spaces for dialogue and farewell. Parents view the Wish as a legacy from their child, which is helping them to give back meaning to their loss. [ABSTRACT FROM AUTHOR] |
| Abstract (Spanish): | Introducción: El cumplimiento de un Deseo a un niño/a adolescente en la etapa final de la vida, puede considerarse una herramienta valiosa de la atención en el ámbito de los Cuidados Paliativos Pediátricos durante el proceso de duelo de los padres. Esta intervención contribuye a mejorar la calidad de vida del niño y ofrece un recurso significativo para las familias durante la despedida. Objetivo: Explorar la percepción de los padres sobre el cumplimiento de Deseo de su hijo/a ya fallecido en el contexto de Cuidados Paliativos Pediátricos. Método: Estudio cualitativo desde la Teoría Fundamentada. Los participantes fueron madres/padres cuyos hijos cumplieron un Deseo a través de la Fundación 38 Grados (Madrid) y ya habían fallecido en el momento del estudio. Análisis de los datos a través del método de comparación constante hasta identificar los conceptos clave y la categoría central. Resultados: Emergen cuatro categorías principales 1) el Deseo abre puertas, 2) sitúa al niño/a y a la familia, 3) querer devolver lo recibido y 4) experiencia del deseo. De estas categorías surgieron 12 dimensiones y una categoría central. Conclusiones: El cumplimiento del Deseo ha sido una experiencia intensa para los padres quienes la recuerdan de manera positiva y les impulsa para ayudar a otras personas que hayan perdido a sus hijos. Esta intervención ha creado espacios significativos para el diálogo y la despedida. Los padres consideran el Deseo como un legado del hijo/a que les está ayudando a resignificar su pérdida. [ABSTRACT FROM AUTHOR] |
| Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | MedicLatina |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: lth DbLabel: MedicLatina An: 191308132 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Deseos cumplidos al final de la vida del niño/a: construcción de significados desde la perspectiva de las familias. Un estudio cualitativo. – Name: TitleAlt Label: Alternate Title Group: TiAlt Data: Fulfilled wishes at the end of a child's life: Meaning construction from the families' perspective. A qualitative studys. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Chocarrro+González%2C+Lourdes%22">Chocarrro González, Lourdes</searchLink><relatesTo>1</relatesTo><i> lourdes.chocarro@oberon.es</i><br /><searchLink fieldCode="AR" term="%22González+Villanueva%2C+Purificación%22">González Villanueva, Purificación</searchLink><relatesTo>2</relatesTo><i> purigonzalez57@gmail.com</i><br /><searchLink fieldCode="AR" term="%22Martínez+Monroy%2C+Aurora%22">Martínez Monroy, Aurora</searchLink><relatesTo>3</relatesTo><i> aurora@porqueviven.org</i><br /><searchLink fieldCode="AR" term="%22Herrero%2C+Araceli%22">Herrero, Araceli</searchLink><relatesTo>4</relatesTo><i> araceli.herrero@fundacion38grados.org</i><br /><searchLink fieldCode="AR" term="%22Martínez-Mena%2C+María%22">Martínez-Mena, María</searchLink><relatesTo>5</relatesTo><i> maria.martinezmena@fundacion38grados.org</i><br /><searchLink fieldCode="AR" term="%22Ramos%2C+Rocío%22">Ramos, Rocío</searchLink><relatesTo>5</relatesTo><i> rocio.ramos@fundacion38grados.org</i><br /><searchLink fieldCode="AR" term="%22Martino+Alba%2C+Ricardo%22">Martino Alba, Ricardo</searchLink><relatesTo>6</relatesTo><i> ricardojavier.martino@salud.madrid.org</i> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Psicooncologia%22">Psicooncologia</searchLink>. jul-dic2025, Vol. 22 Issue 2, p209-223. 15p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22PALLIATIVE+treatment%22">PALLIATIVE treatment</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITATIVE+research%22">QUALITATIVE research</searchLink><br /><searchLink fieldCode="DE" term="%22PARENT+attitudes%22">PARENT attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22PSYCHOLOGICAL+well-being%22">PSYCHOLOGICAL well-being</searchLink><br /><searchLink fieldCode="DE" term="%22PEDIATRICS%22">PEDIATRICS</searchLink><br /><searchLink fieldCode="DE" term="%22PARENTS+of+children+with+disabilities%22">PARENTS of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22GRIEF%22">GRIEF</searchLink><br /><searchLink fieldCode="DE" term="%22GROUNDED+theory%22">GROUNDED theory</searchLink><br /><searchLink fieldCode="DE" term="%22COMPARATIVE+studies%22">COMPARATIVE studies</searchLink><br /><searchLink fieldCode="DE" term="%22PSYCHOSOCIAL+factors%22">PSYCHOSOCIAL factors</searchLink><br /><searchLink fieldCode="DE" term="%22ADVANCE+directives+%28Medical+care%29%22">ADVANCE directives (Medical care)</searchLink> – Name: Abstract Label: Abstract (English) Group: Ab Data: Introduction: Granting the wishes of an adolescent child in their final stages of life can be regarded as a valuable tool of care within Pediatric Palliative Care during the parents' grieving process. This intervention helps to improve the child's quality of life and provides a meaningful resource for families during their farewell. Aim: Exploring the parents' perception of their deceased child's wish-granted in the context of Pediatric Palliative Care. Methods: A qualitative study from Grounded Theory. Participants were parents of children whose wishes were granted by Fundación 38 Grados (Madrid) and whose children were already deceased at the time of the study. Data was analyzed via constant comparison method until identification of key concepts and the core category were reached. Results: Four main categories arise: 1) Wish-granting opens doors; 2) it positions the family; 3) Wanting to give back what they have received; 4) experiencing wish-granting.12 dimensions and a core category rose from those categories. Conclusions: Wish-granting has been an intense experience for parents, who look back on it positively and it drives them now to help others who have lost their children. This intervention has provided meaningful spaces for dialogue and farewell. Parents view the Wish as a legacy from their child, which is helping them to give back meaning to their loss. [ABSTRACT FROM AUTHOR] – Name: Abstract Label: Abstract (Spanish) Group: Ab Data: Introducción: El cumplimiento de un Deseo a un niño/a adolescente en la etapa final de la vida, puede considerarse una herramienta valiosa de la atención en el ámbito de los Cuidados Paliativos Pediátricos durante el proceso de duelo de los padres. Esta intervención contribuye a mejorar la calidad de vida del niño y ofrece un recurso significativo para las familias durante la despedida. Objetivo: Explorar la percepción de los padres sobre el cumplimiento de Deseo de su hijo/a ya fallecido en el contexto de Cuidados Paliativos Pediátricos. Método: Estudio cualitativo desde la Teoría Fundamentada. Los participantes fueron madres/padres cuyos hijos cumplieron un Deseo a través de la Fundación 38 Grados (Madrid) y ya habían fallecido en el momento del estudio. Análisis de los datos a través del método de comparación constante hasta identificar los conceptos clave y la categoría central. Resultados: Emergen cuatro categorías principales 1) el Deseo abre puertas, 2) sitúa al niño/a y a la familia, 3) querer devolver lo recibido y 4) experiencia del deseo. De estas categorías surgieron 12 dimensiones y una categoría central. Conclusiones: El cumplimiento del Deseo ha sido una experiencia intensa para los padres quienes la recuerdan de manera positiva y les impulsa para ayudar a otras personas que hayan perdido a sus hijos. Esta intervención ha creado espacios significativos para el diálogo y la despedida. Los padres consideran el Deseo como un legado del hijo/a que les está ayudando a resignificar su pérdida. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.5209/psic.102194 Languages: – Code: spa Text: Spanish PhysicalDescription: Pagination: PageCount: 15 StartPage: 209 Subjects: – SubjectFull: PALLIATIVE treatment Type: general – SubjectFull: QUALITATIVE research Type: general – SubjectFull: PARENT attitudes Type: general – SubjectFull: PSYCHOLOGICAL well-being Type: general – SubjectFull: PEDIATRICS Type: general – SubjectFull: PARENTS of children with disabilities Type: general – SubjectFull: GRIEF Type: general – SubjectFull: GROUNDED theory Type: general – SubjectFull: COMPARATIVE studies Type: general – SubjectFull: PSYCHOSOCIAL factors Type: general – SubjectFull: ADVANCE directives (Medical care) Type: general Titles: – TitleFull: Deseos cumplidos al final de la vida del niño/a: construcción de significados desde la perspectiva de las familias. Un estudio cualitativo. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Chocarrro González, Lourdes – PersonEntity: Name: NameFull: González Villanueva, Purificación – PersonEntity: Name: NameFull: Martínez Monroy, Aurora – PersonEntity: Name: NameFull: Herrero, Araceli – PersonEntity: Name: NameFull: Martínez-Mena, María – PersonEntity: Name: NameFull: Ramos, Rocío – PersonEntity: Name: NameFull: Martino Alba, Ricardo IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 07 Text: jul-dic2025 Type: published Y: 2025 Identifiers: – Type: issn-print Value: 16967240 Numbering: – Type: volume Value: 22 – Type: issue Value: 2 Titles: – TitleFull: Psicooncologia Type: main |
| ResultId | 1 |
