Development of a distributed international patient data registry for hairy cell leukemia.

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Title: Development of a distributed international patient data registry for hairy cell leukemia.
Authors: Andritsos LA; Division of Hematology Oncology, University of New Mexico Comprehensive Cancer Center, Albuquerque, NM, USA., Anghelina M; Department of Biomedical Informatics, The Ohio State University, Columbus, OH, USA., Neal J; Department of Internal Medicine, Division of Hematology, Comprehensive Cancer Center, The Ohio State University, Columbus, OH, USA., Blachly JS; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Mathur P; Department of Research Information Technology, College of Medicine, The Ohio State University, Columbus, OH, USA., Lele O; Department of Biomedical Informatics, The Ohio State University, Columbus, OH, USA., Dearden C; The Royal Marsden NHS Foundation Trust, London, UK., Iyengar S; The Royal Marsden NHS Foundation Trust, London, UK., Cross M; The Royal Marsden NHS Foundation Trust, London, UK., Zent CS; James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY, USA., Rogers KA; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Epperla N; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Lozanski G; Department of Pathology, The Ohio State University Medical Center, Columbus, OH, USA., Oakes CC; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Kraut E; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Ruppert AS; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Zhao Q; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Bhat SA; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA., Forconi F; Cancer Sciences and Haematology Department, University of Southampton Hospital Trust, Southampton, UK., Banerji V; Department of Internal Medicine & Biochemistry and Medical Genetics, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada.; Research Institute in Oncology and Hematology, Winnipeg, Canada., Handunnetti S; Haematology Department, Peter MacCallum Cancer Centre & Royal Melbourne Hospital, University of Melbourne, Melbourne, Australia., Tam CS; Haematology Department, Peter MacCallum Cancer Centre & Royal Melbourne Hospital, University of Melbourne, Melbourne, Australia., Seymour JF; Haematology Department, Peter MacCallum Cancer Centre & Royal Melbourne Hospital, University of Melbourne, Melbourne, Australia., Else M; The Institute of Cancer Research, London, UK., Kreitman RJ; Laboratory of Molecular Biology, National Cancer Institute, NIH, Bethesda, MD, USA., Saven A; Division of Hematology and Oncology, Scripps Clinic, La Jolla, CA, USA., Call T; Division of Hematology, Mayo Clinic, Rochester, MN, USA., Parikh SA; Division of Hematology, Mayo Clinic, Rochester, MN, USA., Ravandi F; Department of Leukemia, University of Texas MD Anderson Cancer Center, Houston, TX, USA., Johnston JB; Department of Internal Medicine & Biochemistry and Medical Genetics, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada.; Research Institute in Oncology and Hematology, Winnipeg, Canada., Tiacci E; Department of Medicine and Surgery, Institute of Hematology, University and Hospital of Perugia, Perugia, Italy., Troussard X; Department of Hematology, Centre Hospitalier Universitaire Cote de Nacre, Caen, France., Tallman MS; Department of Medicine, Memorial Sloan Kettering Cancer Center, New York, NY, USA., Dietrich S; Department of Hematology, University Hospital of Heidelberg, Heidelberg, Germany., Tadmor T; Hematology Division, Bnai Zion Medical Center and The Ruth and Bruce Rappaport Faculty of Medicine, Technion, Haifa, Israel., Gozzetti A; Department of Medicine, University of Siena Policlinico S Maria alle Scotte, Siena, Italy., Zinzani PL; Dipartimento di Medicina Specialistica, Diagnostica e Sperimentale Università degli Studi, IRCCS Azienda Ospedaliero-Universitaria di Bologna and Istituto di Ematologia 'Seràgnoli', Bologna, Italy., Robak T; Department of Hematology, Medical University of Lodz, Lodz, Poland., Quest G; Pathology and Molecular Medicine, Queen's University and Kingston Health Sciences Centre, Kingston, Canada., Demeter J; Department of Internal Medicine and Oncology, Semmelweis University, Budapest, Hungary., Rai K; Zucker School of Medicine at Hofstra/Northwell, New Hyde Park, NY, USA., Fernandez SA; Department of Biomedical Informatics, The Ohio State University, Columbus, OH, USA., Grever M; Department of Internal Medicine, Division of Hematology, The Ohio State University, Columbus, OH, USA.
Source: Leukemia & lymphoma [Leuk Lymphoma] 2022 Dec; Vol. 63 (13), pp. 3021-3031. Date of Electronic Publication: 2022 Sep 07.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural
Journal Info: Publisher: Taylor & Francis Country of Publication: United States NLM ID: 9007422 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1029-2403 (Electronic) Linking ISSN: 10268022 NLM ISO Abbreviation: Leuk Lymphoma Subsets: MEDLINE
Database: MEDLINE Ultimate
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ISSN:1029-2403
DOI:10.1080/10428194.2022.2109157