Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives.
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| Title: | Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives. |
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| Authors: | Stubbs LA; Department of Pediatrics, Division of Rheumatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Ferry AM; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Guffey D; Institute for Clinical and Translational Research, Baylor College of Medicine, Houston, TX, USA., Loccke C; Board of Directors, National Scleroderma Foundation, Danvers, MA, USA., Wade EM; Boca Raton, FL, USA., Pour P; Advisory Board Member, Scleroderma Foundation Michigan Chapter, Southfield, MI, USA., Ardalan K; Department of Pediatrics, Division of Rheumatology, Duke University School of Medicine, Durham, NC, USA., Chira P; Department of Pediatrics, Division of Rheumatology, University of California San Diego, San Diego, CA, USA., Ganske IM; Department of Plastic and Oral Surgery, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA., Glaser D; Department of Pediatrics, Section of General Pediatrics, Yale University, New Haven, CT, USA., Higgins G; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA., Luca N; Department of Pediatrics, Division of Pediatric Rheumatology, University of Calgary and Alberta Children's Hospital Research Institute, Calgary, AB, Canada., Moore KF; Department of Pediatrics, Division of Pediatric Rheumatology, University of Colorado School of Medicine, Aurora, CO, USA., Sivaraman V; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA., Stewart K; Department of Pediatrics, Division of Pediatric Rheumatology, University of Texas Southwestern, Dallas, TX, USA., Vasquez-Canizares N; Department of Pediatrics, Division of Pediatric Rheumatology, Albert Einstein College of Medicine and Children's Hospital at Montefiore, Bronx, NY, USA., Hunt RD; Department of Dermatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Maricevich RS; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Torok KS; Department of Pediatrics, Division of Pediatric Rheumatology, University of Pittsburgh and Children's Hospital of Pittsburgh, Pittsburgh, PA, USA., Li SC; Department of Pediatrics, Division of Pediatric Rheumatology, Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, 30 Prospect Avenue, Hackensack, NJ, 07601, USA. suzanne.li@hmhn.org. |
| Corporate Authors: | Childhood Arthritis, Rheumatology Research Alliance (CARRA) Scleroderma Workgroup |
| Source: | Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2023 Apr 25; Vol. 21 (1), pp. 39. Date of Electronic Publication: 2023 Apr 25. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101248897 Publication Model: Electronic Cited Medium: Internet ISSN: 1546-0096 (Electronic) Linking ISSN: 15460096 NLM ISO Abbreviation: Pediatr Rheumatol Online J Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1546-0096 |
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| DOI: | 10.1186/s12969-023-00819-6 |
