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Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives.

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Title: Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives.
Authors: Stubbs LA; Department of Pediatrics, Division of Rheumatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Ferry AM; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Guffey D; Institute for Clinical and Translational Research, Baylor College of Medicine, Houston, TX, USA., Loccke C; Board of Directors, National Scleroderma Foundation, Danvers, MA, USA., Wade EM; Boca Raton, FL, USA., Pour P; Advisory Board Member, Scleroderma Foundation Michigan Chapter, Southfield, MI, USA., Ardalan K; Department of Pediatrics, Division of Rheumatology, Duke University School of Medicine, Durham, NC, USA., Chira P; Department of Pediatrics, Division of Rheumatology, University of California San Diego, San Diego, CA, USA., Ganske IM; Department of Plastic and Oral Surgery, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA., Glaser D; Department of Pediatrics, Section of General Pediatrics, Yale University, New Haven, CT, USA., Higgins G; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA., Luca N; Department of Pediatrics, Division of Pediatric Rheumatology, University of Calgary and Alberta Children's Hospital Research Institute, Calgary, AB, Canada., Moore KF; Department of Pediatrics, Division of Pediatric Rheumatology, University of Colorado School of Medicine, Aurora, CO, USA., Sivaraman V; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA., Stewart K; Department of Pediatrics, Division of Pediatric Rheumatology, University of Texas Southwestern, Dallas, TX, USA., Vasquez-Canizares N; Department of Pediatrics, Division of Pediatric Rheumatology, Albert Einstein College of Medicine and Children's Hospital at Montefiore, Bronx, NY, USA., Hunt RD; Department of Dermatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Maricevich RS; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA., Torok KS; Department of Pediatrics, Division of Pediatric Rheumatology, University of Pittsburgh and Children's Hospital of Pittsburgh, Pittsburgh, PA, USA., Li SC; Department of Pediatrics, Division of Pediatric Rheumatology, Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, 30 Prospect Avenue, Hackensack, NJ, 07601, USA. suzanne.li@hmhn.org.
Corporate Authors: Childhood Arthritis, Rheumatology Research Alliance (CARRA) Scleroderma Workgroup
Source: Pediatric rheumatology online journal [Pediatr Rheumatol Online J] 2023 Apr 25; Vol. 21 (1), pp. 39. Date of Electronic Publication: 2023 Apr 25.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101248897 Publication Model: Electronic Cited Medium: Internet ISSN: 1546-0096 (Electronic) Linking ISSN: 15460096 NLM ISO Abbreviation: Pediatr Rheumatol Online J Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives.
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  Data: <searchLink fieldCode="AU" term="%22Stubbs+LA%22">Stubbs LA</searchLink>; Department of Pediatrics, Division of Rheumatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.<br /><searchLink fieldCode="AU" term="%22Ferry+AM%22">Ferry AM</searchLink>; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.<br /><searchLink fieldCode="AU" term="%22Guffey+D%22">Guffey D</searchLink>; Institute for Clinical and Translational Research, Baylor College of Medicine, Houston, TX, USA.<br /><searchLink fieldCode="AU" term="%22Loccke+C%22">Loccke C</searchLink>; Board of Directors, National Scleroderma Foundation, Danvers, MA, USA.<br /><searchLink fieldCode="AU" term="%22Wade+EM%22">Wade EM</searchLink>; Boca Raton, FL, USA.<br /><searchLink fieldCode="AU" term="%22Pour+P%22">Pour P</searchLink>; Advisory Board Member, Scleroderma Foundation Michigan Chapter, Southfield, MI, USA.<br /><searchLink fieldCode="AU" term="%22Ardalan+K%22">Ardalan K</searchLink>; Department of Pediatrics, Division of Rheumatology, Duke University School of Medicine, Durham, NC, USA.<br /><searchLink fieldCode="AU" term="%22Chira+P%22">Chira P</searchLink>; Department of Pediatrics, Division of Rheumatology, University of California San Diego, San Diego, CA, USA.<br /><searchLink fieldCode="AU" term="%22Ganske+IM%22">Ganske IM</searchLink>; Department of Plastic and Oral Surgery, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Glaser+D%22">Glaser D</searchLink>; Department of Pediatrics, Section of General Pediatrics, Yale University, New Haven, CT, USA.<br /><searchLink fieldCode="AU" term="%22Higgins+G%22">Higgins G</searchLink>; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA.<br /><searchLink fieldCode="AU" term="%22Luca+N%22">Luca N</searchLink>; Department of Pediatrics, Division of Pediatric Rheumatology, University of Calgary and Alberta Children's Hospital Research Institute, Calgary, AB, Canada.<br /><searchLink fieldCode="AU" term="%22Moore+KF%22">Moore KF</searchLink>; Department of Pediatrics, Division of Pediatric Rheumatology, University of Colorado School of Medicine, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Sivaraman+V%22">Sivaraman V</searchLink>; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA.<br /><searchLink fieldCode="AU" term="%22Stewart+K%22">Stewart K</searchLink>; Department of Pediatrics, Division of Pediatric Rheumatology, University of Texas Southwestern, Dallas, TX, USA.<br /><searchLink fieldCode="AU" term="%22Vasquez-Canizares+N%22">Vasquez-Canizares N</searchLink>; Department of Pediatrics, Division of Pediatric Rheumatology, Albert Einstein College of Medicine and Children's Hospital at Montefiore, Bronx, NY, USA.<br /><searchLink fieldCode="AU" term="%22Hunt+RD%22">Hunt RD</searchLink>; Department of Dermatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.<br /><searchLink fieldCode="AU" term="%22Maricevich+RS%22">Maricevich RS</searchLink>; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.<br /><searchLink fieldCode="AU" term="%22Torok+KS%22">Torok KS</searchLink>; Department of Pediatrics, Division of Pediatric Rheumatology, University of Pittsburgh and Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.<br /><searchLink fieldCode="AU" term="%22Li+SC%22">Li SC</searchLink>; Department of Pediatrics, Division of Pediatric Rheumatology, Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, 30 Prospect Avenue, Hackensack, NJ, 07601, USA. suzanne.li@hmhn.org.
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  Data: <searchLink fieldCode="CA" term="%22Childhood+Arthritis%2C+Rheumatology+Research+Alliance+%28CARRA%29+Scleroderma+Workgroup%22">Childhood Arthritis, Rheumatology Research Alliance (CARRA) Scleroderma Workgroup</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22101248897%22">Pediatric rheumatology online journal</searchLink> [Pediatr Rheumatol Online J] 2023 Apr 25; Vol. 21 (1), pp. 39. <i>Date of Electronic Publication: </i>2023 Apr 25.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101248897 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1546-0096 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215460096%22">15460096 </searchLink><i>NLM ISO Abbreviation: </i>Pediatr Rheumatol Online J <i>Subsets: </i>MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=37098622
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