Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany.
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| Title: | Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany. |
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| Authors: | Maltseva M; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany., Rosenow F; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany., Schubert-Bast S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany., Flege S; Dravet Syndrom e.V., Frankfurt am Main, Germany., Wolff M; Center of Pediatric Neurology, Vivantes Hospital Neukoelln, Berlin, Germany.; Swiss Epilepsy Center, Klinik Lengg AG, Zürich, Switzerland., von Spiczak S; Northern German Epilepsy Centre for Children and Adolescents, Kiel-Raisdorf, Germany., Trollmann R; Department of Neuropediatrics, Friedrich-Alexander University, Erlangen, Germany., Syrbe S; Division of Pediatric Epileptology, Center for Pediatrics and Adolescent Medicine, University Hospital Heidelberg, Heidelberg, Germany., Ruf S; Department of Neuropediatrics, University of Tübingen, Tübingen, Germany., Polster T; Department of Epileptology, Bielefeld University, Krankenhaus Mara, Epilepsy Center Bethel, Bielefeld, Germany., Neubauer BA; Department of Neuropediatrics, Justus-Liebig-University Giessen, Giessen, Germany., Mayer T; Epilepsy Center Kleinwachau, Dresden-Radeberg, Germany., Jacobs J; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany.; Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada., Kurlemann G; St. Bonifatius Hospital, Lingen, Germany., Kluger G; Clinic for Neuropediatrics and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schoen Clinic Vogtareuth, Vogtareuth, Germany.; Research Institute 'Rehabilitation, Transition, and Palliation', PMU Salzburg, Salzburg, Austria., Klotz KA; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany., Kieslich M; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany., Kay L; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany., Hornemann F; Department of Neuropediatrics, Leipzig University Hospital for Children and Adolescents, Leipzig, Germany.; Department of Child and Adolescent Medicine, Klinikum Chemnitz, Chemnitz, Germany., Bettendorf U; Neuropediatric Practice, Hirschaid, Germany., Bertsche A; Department of Neuropediatrics, University Hospital for Children and Adolescents, Rostock, Germany.; Department of Neuropediatrics, University Hospital for Children and Adolescents, Greifswald, Germany., Bast T; Epilepsy Center Kork, Kehl-Kork, Germany.; Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany., Strzelczyk A; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg, Germany. |
| Source: | Epilepsia [Epilepsia] 2024 Jan; Vol. 65 (1), pp. 115-126. Date of Electronic Publication: 2023 Nov 10. |
| Publication Type: | Multicenter Study; Journal Article |
| Journal Info: | Publisher: Blackwell Science Country of Publication: United States NLM ID: 2983306R Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1528-1167 (Electronic) Linking ISSN: 00139580 NLM ISO Abbreviation: Epilepsia Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1528-1167 |
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| DOI: | 10.1111/epi.17799 |
