Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany.
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| Title: | Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany. |
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| Authors: | Maltseva M; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany., Rosenow F; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany., Schubert-Bast S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany., Flege S; Dravet Syndrom e.V., Frankfurt am Main, Germany., Wolff M; Center of Pediatric Neurology, Vivantes Hospital Neukoelln, Berlin, Germany.; Swiss Epilepsy Center, Klinik Lengg AG, Zürich, Switzerland., von Spiczak S; Northern German Epilepsy Centre for Children and Adolescents, Kiel-Raisdorf, Germany., Trollmann R; Department of Neuropediatrics, Friedrich-Alexander University, Erlangen, Germany., Syrbe S; Division of Pediatric Epileptology, Center for Pediatrics and Adolescent Medicine, University Hospital Heidelberg, Heidelberg, Germany., Ruf S; Department of Neuropediatrics, University of Tübingen, Tübingen, Germany., Polster T; Department of Epileptology, Bielefeld University, Krankenhaus Mara, Epilepsy Center Bethel, Bielefeld, Germany., Neubauer BA; Department of Neuropediatrics, Justus-Liebig-University Giessen, Giessen, Germany., Mayer T; Epilepsy Center Kleinwachau, Dresden-Radeberg, Germany., Jacobs J; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany.; Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada., Kurlemann G; St. Bonifatius Hospital, Lingen, Germany., Kluger G; Clinic for Neuropediatrics and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schoen Clinic Vogtareuth, Vogtareuth, Germany.; Research Institute 'Rehabilitation, Transition, and Palliation', PMU Salzburg, Salzburg, Austria., Klotz KA; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany., Kieslich M; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany., Kay L; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany., Hornemann F; Department of Neuropediatrics, Leipzig University Hospital for Children and Adolescents, Leipzig, Germany.; Department of Child and Adolescent Medicine, Klinikum Chemnitz, Chemnitz, Germany., Bettendorf U; Neuropediatric Practice, Hirschaid, Germany., Bertsche A; Department of Neuropediatrics, University Hospital for Children and Adolescents, Rostock, Germany.; Department of Neuropediatrics, University Hospital for Children and Adolescents, Greifswald, Germany., Bast T; Epilepsy Center Kork, Kehl-Kork, Germany.; Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany., Strzelczyk A; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg, Germany. |
| Source: | Epilepsia [Epilepsia] 2024 Jan; Vol. 65 (1), pp. 115-126. Date of Electronic Publication: 2023 Nov 10. |
| Publication Type: | Multicenter Study; Journal Article |
| Journal Info: | Publisher: Blackwell Science Country of Publication: United States NLM ID: 2983306R Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1528-1167 (Electronic) Linking ISSN: 00139580 NLM ISO Abbreviation: Epilepsia Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 37846648 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Maltseva+M%22">Maltseva M</searchLink>; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Rosenow+F%22">Rosenow F</searchLink>; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Schubert-Bast+S%22">Schubert-Bast S</searchLink>; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Flege+S%22">Flege S</searchLink>; Dravet Syndrom e.V., Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Wolff+M%22">Wolff M</searchLink>; Center of Pediatric Neurology, Vivantes Hospital Neukoelln, Berlin, Germany.; Swiss Epilepsy Center, Klinik Lengg AG, Zürich, Switzerland.<br /><searchLink fieldCode="AU" term="%22von+Spiczak+S%22">von Spiczak S</searchLink>; Northern German Epilepsy Centre for Children and Adolescents, Kiel-Raisdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Trollmann+R%22">Trollmann R</searchLink>; Department of Neuropediatrics, Friedrich-Alexander University, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Syrbe+S%22">Syrbe S</searchLink>; Division of Pediatric Epileptology, Center for Pediatrics and Adolescent Medicine, University Hospital Heidelberg, Heidelberg, Germany.<br /><searchLink fieldCode="AU" term="%22Ruf+S%22">Ruf S</searchLink>; Department of Neuropediatrics, University of Tübingen, Tübingen, Germany.<br /><searchLink fieldCode="AU" term="%22Polster+T%22">Polster T</searchLink>; Department of Epileptology, Bielefeld University, Krankenhaus Mara, Epilepsy Center Bethel, Bielefeld, Germany.<br /><searchLink fieldCode="AU" term="%22Neubauer+BA%22">Neubauer BA</searchLink>; Department of Neuropediatrics, Justus-Liebig-University Giessen, Giessen, Germany.<br /><searchLink fieldCode="AU" term="%22Mayer+T%22">Mayer T</searchLink>; Epilepsy Center Kleinwachau, Dresden-Radeberg, Germany.<br /><searchLink fieldCode="AU" term="%22Jacobs+J%22">Jacobs J</searchLink>; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany.; Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.<br /><searchLink fieldCode="AU" term="%22Kurlemann+G%22">Kurlemann G</searchLink>; St. Bonifatius Hospital, Lingen, Germany.<br /><searchLink fieldCode="AU" term="%22Kluger+G%22">Kluger G</searchLink>; Clinic for Neuropediatrics and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schoen Clinic Vogtareuth, Vogtareuth, Germany.; Research Institute 'Rehabilitation, Transition, and Palliation', PMU Salzburg, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Klotz+KA%22">Klotz KA</searchLink>; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany.<br /><searchLink fieldCode="AU" term="%22Kieslich+M%22">Kieslich M</searchLink>; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Kay+L%22">Kay L</searchLink>; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Hornemann+F%22">Hornemann F</searchLink>; Department of Neuropediatrics, Leipzig University Hospital for Children and Adolescents, Leipzig, Germany.; Department of Child and Adolescent Medicine, Klinikum Chemnitz, Chemnitz, Germany.<br /><searchLink fieldCode="AU" term="%22Bettendorf+U%22">Bettendorf U</searchLink>; Neuropediatric Practice, Hirschaid, Germany.<br /><searchLink fieldCode="AU" term="%22Bertsche+A%22">Bertsche A</searchLink>; Department of Neuropediatrics, University Hospital for Children and Adolescents, Rostock, Germany.; Department of Neuropediatrics, University Hospital for Children and Adolescents, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Bast+T%22">Bast T</searchLink>; Epilepsy Center Kork, Kehl-Kork, Germany.; Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany.<br /><searchLink fieldCode="AU" term="%22Strzelczyk+A%22">Strzelczyk A</searchLink>; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg, Germany. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%222983306R%22">Epilepsia</searchLink> [Epilepsia] 2024 Jan; Vol. 65 (1), pp. 115-126. <i>Date of Electronic Publication: </i>2023 Nov 10. – Name: TypePub Label: Publication Type Group: TypPub Data: Multicenter Study; Journal Article – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Blackwell+Science%22">Blackwell Science </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>2983306R <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1528-1167 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200139580%22">00139580 </searchLink><i>NLM ISO Abbreviation: </i>Epilepsia <i>Subsets: </i>MEDLINE |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=37846648 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/epi.17799 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 115 Titles: – TitleFull: Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Maltseva M – PersonEntity: Name: NameFull: Rosenow F – PersonEntity: Name: NameFull: Schubert-Bast S – PersonEntity: Name: NameFull: Flege S – PersonEntity: Name: NameFull: Wolff M – PersonEntity: Name: NameFull: von Spiczak S – PersonEntity: Name: NameFull: Trollmann R – PersonEntity: Name: NameFull: Syrbe S – PersonEntity: Name: NameFull: Ruf S – PersonEntity: Name: NameFull: Polster T – PersonEntity: Name: NameFull: Neubauer BA – PersonEntity: Name: NameFull: Mayer T – PersonEntity: Name: NameFull: Jacobs J – PersonEntity: Name: NameFull: Kurlemann G – PersonEntity: Name: NameFull: Kluger G – PersonEntity: Name: NameFull: Klotz KA – PersonEntity: Name: NameFull: Kieslich M – PersonEntity: Name: NameFull: Kay L – PersonEntity: Name: NameFull: Hornemann F – PersonEntity: Name: NameFull: Bettendorf U – PersonEntity: Name: NameFull: Bertsche A – PersonEntity: Name: NameFull: Bast T – PersonEntity: Name: NameFull: Strzelczyk A IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Text: 2024 Jan Type: published Y: 2024 Identifiers: – Type: issn-electronic Value: 1528-1167 Numbering: – Type: volume Value: 65 – Type: issue Value: 1 Titles: – TitleFull: Epilepsia Type: main |
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