Development and utility of a clinical research informatics application for participant recruitment and workflow management for a return of results pilot trial in familial hypercholesterolemia in the Million Veteran Program.
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| Title: | Development and utility of a clinical research informatics application for participant recruitment and workflow management for a return of results pilot trial in familial hypercholesterolemia in the Million Veteran Program. |
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| Authors: | Brunette CA; Veterans Affairs Boston Healthcare System, Boston, MA, United States.; Department of Medicine, Harvard Medical School, Boston, MA, United States., Yi T; Veterans Affairs Boston Healthcare System, Boston, MA, United States., Danowski ME; Veterans Affairs Boston Healthcare System, Boston, MA, United States., Cardellino M; Veterans Affairs Boston Healthcare System, Boston, MA, United States., Harrison A; Genetic Counseling Program, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, United States., Assimes TL; VA Palo Alto Health Care System, Palo Alto, CA, United States.; Division of Cardiovascular Medicine, Department of Medicine, Stanford University School of Medicine, Palo Alto, CA, United States.; Stanford Cardiovascular Institute, Stanford University, Palo Alto, CA, United States.; Department of Epidemiology and Population Health, Stanford University School of Medicine, Palo Alto, CA, United States., Knowles JW; Division of Cardiovascular Medicine, Department of Medicine, Stanford University School of Medicine, Palo Alto, CA, United States.; Stanford Cardiovascular Institute, Stanford University, Palo Alto, CA, United States.; Family Heart Foundation, Pasadena, CA, United States., Christensen KD; PRecisiOn Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine, Harvard Pilgrim Health Care Institute, Boston, MA, United States.; Department of Population Medicine, Harvard Medical School, Boston, MA, United States., Sturm AC; 23andMe, Sunnyvale, CA, United States., Sun YV; Atlanta VA Health Care System, Decatur, GA, United States.; Department of Epidemiology, Emory University Rollins School of Public Health, Atlanta, GA, United States., Hui Q; Atlanta VA Health Care System, Decatur, GA, United States.; Department of Epidemiology, Emory University Rollins School of Public Health, Atlanta, GA, United States., Pyarajan S; Veterans Affairs Boston Healthcare System, Boston, MA, United States.; Department of Medicine, Harvard Medical School, Boston, MA, United States., Shi Y; Veterans Affairs Boston Healthcare System, Boston, MA, United States., Whitbourne SB; Veterans Affairs Boston Healthcare System, Boston, MA, United States.; Department of Medicine, Harvard Medical School, Boston, MA, United States.; Division of Aging, Department of Medicine, Brigham and Women's Hospital, Boston, MA, United States., Gaziano JM; Veterans Affairs Boston Healthcare System, Boston, MA, United States.; Department of Medicine, Harvard Medical School, Boston, MA, United States.; Division of Aging, Department of Medicine, Brigham and Women's Hospital, Boston, MA, United States., Muralidhar S; Office of Research and Development, Veterans Health Administration, Washington, DC, United States., Vassy JL; Veterans Affairs Boston Healthcare System, Boston, MA, United States.; Department of Medicine, Harvard Medical School, Boston, MA, United States.; Division of General Internal Medicine and Primary Care, Brigham and Women's Hospital, Boston, MA, United States.; Population Precision Health, Ariadne Labs, Boston, MA, United States. |
| Source: | JAMIA open [JAMIA Open] 2024 Mar 08; Vol. 7 (1), pp. ooae020. Date of Electronic Publication: 2024 Mar 08 (Print Publication: 2024). |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Oxford University Press on behalf of the American Medical Informatics Association Country of Publication: United States NLM ID: 101730643 Publication Model: eCollection Cited Medium: Internet ISSN: 2574-2531 (Electronic) Linking ISSN: 25742531 NLM ISO Abbreviation: JAMIA Open Subsets: PubMed not MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 2574-2531 |
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| DOI: | 10.1093/jamiaopen/ooae020 |
