Adherence to delayed-release cysteamine in nephropathic cystinosis over time: data from the prospective CrYSTobs cohort study.

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Title: Adherence to delayed-release cysteamine in nephropathic cystinosis over time: data from the prospective CrYSTobs cohort study.
Authors: Grosyeux C; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France. c.grosyeux@chru-nancy.fr.; Néphrologie-Dialyse-Transplantation Pédiatrique, Centre Hospitalier Universitaire de Nancy, Rue du Morvan, 54511, Vandoeuvre-Lès-Nancy Cedex, France. c.grosyeux@chru-nancy.fr., Gaillard S; Department of Clinical Epidemiology, Hospices Civils de Lyon, EPICIME-CIC 1407 de Lyon, Inserm, CHU-Lyon, 69677, Bron, France.; Université de Lyon 1, CNRS, UMR 5558, Laboratoire de Biométrie Et Biologie Evolutive, F-69622, Villeurbanne, France., Morin D; CHU Montpellier, Service de Néphrologie Et Endocrinologie Pédiatrique, 34295, Montpellier, France., Hogan J; Pediatric Nephrology Department, Robert-Debré Hospital, APHP, Paris, France., Acquaviva-Bourdain C; Service de Biochimie Et Biologie Moléculaire, UM Pathologies Héréditaires du Métabolisme Et du Globule Rouge, Hospices Civils de Lyon, Lyon, France., Bacchetta J; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France., Bertholet-Thomas A; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France. aurelia.bertholet-thomas@chu-lyon.fr.; Service de Néphrologie Pédiatrique, Centre de Référence Des Maladies Rares du Calcium Et du Phosphore, Hôpital Femme Mère Enfant, 59 Boulevard Pinel 69500, Bron, France. aurelia.bertholet-thomas@chu-lyon.fr.
Source: Pediatric nephrology (Berlin, Germany) [Pediatr Nephrol] 2025 Jul; Vol. 40 (7), pp. 2319-2327. Date of Electronic Publication: 2025 Feb 04.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Springer International Country of Publication: Germany NLM ID: 8708728 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1432-198X (Electronic) Linking ISSN: 0931041X NLM ISO Abbreviation: Pediatr Nephrol Subsets: MEDLINE
Database: MEDLINE Ultimate
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ISSN:1432-198X
DOI:10.1007/s00467-025-06699-0