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Adherence to delayed-release cysteamine in nephropathic cystinosis over time: data from the prospective CrYSTobs cohort study.

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Title: Adherence to delayed-release cysteamine in nephropathic cystinosis over time: data from the prospective CrYSTobs cohort study.
Authors: Grosyeux C; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France. c.grosyeux@chru-nancy.fr.; Néphrologie-Dialyse-Transplantation Pédiatrique, Centre Hospitalier Universitaire de Nancy, Rue du Morvan, 54511, Vandoeuvre-Lès-Nancy Cedex, France. c.grosyeux@chru-nancy.fr., Gaillard S; Department of Clinical Epidemiology, Hospices Civils de Lyon, EPICIME-CIC 1407 de Lyon, Inserm, CHU-Lyon, 69677, Bron, France.; Université de Lyon 1, CNRS, UMR 5558, Laboratoire de Biométrie Et Biologie Evolutive, F-69622, Villeurbanne, France., Morin D; CHU Montpellier, Service de Néphrologie Et Endocrinologie Pédiatrique, 34295, Montpellier, France., Hogan J; Pediatric Nephrology Department, Robert-Debré Hospital, APHP, Paris, France., Acquaviva-Bourdain C; Service de Biochimie Et Biologie Moléculaire, UM Pathologies Héréditaires du Métabolisme Et du Globule Rouge, Hospices Civils de Lyon, Lyon, France., Bacchetta J; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France., Bertholet-Thomas A; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France. aurelia.bertholet-thomas@chu-lyon.fr.; Service de Néphrologie Pédiatrique, Centre de Référence Des Maladies Rares du Calcium Et du Phosphore, Hôpital Femme Mère Enfant, 59 Boulevard Pinel 69500, Bron, France. aurelia.bertholet-thomas@chu-lyon.fr.
Source: Pediatric nephrology (Berlin, Germany) [Pediatr Nephrol] 2025 Jul; Vol. 40 (7), pp. 2319-2327. Date of Electronic Publication: 2025 Feb 04.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Springer International Country of Publication: Germany NLM ID: 8708728 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1432-198X (Electronic) Linking ISSN: 0931041X NLM ISO Abbreviation: Pediatr Nephrol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Adherence to delayed-release cysteamine in nephropathic cystinosis over time: data from the prospective CrYSTobs cohort study.
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  Data: <searchLink fieldCode="AU" term="%22Grosyeux+C%22">Grosyeux C</searchLink>; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France. c.grosyeux@chru-nancy.fr.; Néphrologie-Dialyse-Transplantation Pédiatrique, Centre Hospitalier Universitaire de Nancy, Rue du Morvan, 54511, Vandoeuvre-Lès-Nancy Cedex, France. c.grosyeux@chru-nancy.fr.<br /><searchLink fieldCode="AU" term="%22Gaillard+S%22">Gaillard S</searchLink>; Department of Clinical Epidemiology, Hospices Civils de Lyon, EPICIME-CIC 1407 de Lyon, Inserm, CHU-Lyon, 69677, Bron, France.; Université de Lyon 1, CNRS, UMR 5558, Laboratoire de Biométrie Et Biologie Evolutive, F-69622, Villeurbanne, France.<br /><searchLink fieldCode="AU" term="%22Morin+D%22">Morin D</searchLink>; CHU Montpellier, Service de Néphrologie Et Endocrinologie Pédiatrique, 34295, Montpellier, France.<br /><searchLink fieldCode="AU" term="%22Hogan+J%22">Hogan J</searchLink>; Pediatric Nephrology Department, Robert-Debré Hospital, APHP, Paris, France.<br /><searchLink fieldCode="AU" term="%22Acquaviva-Bourdain+C%22">Acquaviva-Bourdain C</searchLink>; Service de Biochimie Et Biologie Moléculaire, UM Pathologies Héréditaires du Métabolisme Et du Globule Rouge, Hospices Civils de Lyon, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Bacchetta+J%22">Bacchetta J</searchLink>; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Bertholet-Thomas+A%22">Bertholet-Thomas A</searchLink>; Department of Pediatric Nephrology, Rheumatology and Dermatology, University Children's Hospital, Lyon, France. aurelia.bertholet-thomas@chu-lyon.fr.; Service de Néphrologie Pédiatrique, Centre de Référence Des Maladies Rares du Calcium Et du Phosphore, Hôpital Femme Mère Enfant, 59 Boulevard Pinel 69500, Bron, France. aurelia.bertholet-thomas@chu-lyon.fr.
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  Data: <searchLink fieldCode="JN" term="%228708728%22">Pediatric nephrology (Berlin, Germany)</searchLink> [Pediatr Nephrol] 2025 Jul; Vol. 40 (7), pp. 2319-2327. <i>Date of Electronic Publication: </i>2025 Feb 04.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+International%22">Springer International </searchLink><i>Country of Publication: </i>Germany <i>NLM ID: </i>8708728 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1432-198X (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%220931041X%22">0931041X </searchLink><i>NLM ISO Abbreviation: </i>Pediatr Nephrol <i>Subsets: </i>MEDLINE
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              Text: 2025 Jul
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