Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities.
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| Title: | Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities. |
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| Authors: | Powell PA; Sheffield Centre for Health and Related Research, University of Sheffield, Sheffield, UK. p.a.powell@sheffield.ac.uk., Carlton J; Sheffield Centre for Health and Related Research, University of Sheffield, Sheffield, UK., Peasgood T; Sheffield Centre for Health and Related Research, University of Sheffield, Sheffield, UK., Chandler F; Duchenne UK, London, UK., Godfrey J; JG Zebra Consulting, London, UK., Reuben E; Duchenne UK, London, UK. |
| Source: | Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jun; Vol. 34 (6), pp. 1579-1585. Date of Electronic Publication: 2025 Mar 04. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1573-2649 |
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| DOI: | 10.1007/s11136-025-03937-8 |
