Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey.
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| Title: | Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey. |
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| Authors: | Drahos J; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA. Jennifer_Drahos@vrtx.com., Boateng-Kuffour A; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration University of Birmingham, West Midlands Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK., Valentine A; Sick Cells, Washington, DC, USA., Mason A; Sickle Cell Care Manchester, Manchester, UK., Li N; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Pakbaz Z; Division of Hematology Oncology, University of California Irvine School of Medicine, Orange, CA, USA., Shah FT; NHS Blood and Transplant, London, UK., Ainsworth N; QC Medica, Liverpool, UK., Martin AP; QC Medica, Liverpool, UK. |
| Source: | Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jul; Vol. 34 (7), pp. 2019-2029. Date of Electronic Publication: 2025 Apr 17. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1573-2649 |
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| DOI: | 10.1007/s11136-025-03963-6 |
