View in EDS HTML Full Text PDF Full Text

Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey.

Saved in:
Bibliographic Details
Title: Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey.
Authors: Drahos J; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA. Jennifer_Drahos@vrtx.com., Boateng-Kuffour A; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration University of Birmingham, West Midlands Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK., Valentine A; Sick Cells, Washington, DC, USA., Mason A; Sickle Cell Care Manchester, Manchester, UK., Li N; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA., Pakbaz Z; Division of Hematology Oncology, University of California Irvine School of Medicine, Orange, CA, USA., Shah FT; NHS Blood and Transplant, London, UK., Ainsworth N; QC Medica, Liverpool, UK., Martin AP; QC Medica, Liverpool, UK.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jul; Vol. 34 (7), pp. 2019-2029. Date of Electronic Publication: 2025 Apr 17.
Publication Type: Journal Article
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: mdl
DbLabel: MEDLINE Ultimate
An: 40246806
AccessLevel: 2
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22Drahos+J%22">Drahos J</searchLink>; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA. Jennifer_Drahos@vrtx.com.<br /><searchLink fieldCode="AU" term="%22Boateng-Kuffour+A%22">Boateng-Kuffour A</searchLink>; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA.<br /><searchLink fieldCode="AU" term="%22Calvert+M%22">Calvert M</searchLink>; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Applied Research Collaboration University of Birmingham, West Midlands Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Valentine+A%22">Valentine A</searchLink>; Sick Cells, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Mason+A%22">Mason A</searchLink>; Sickle Cell Care Manchester, Manchester, UK.<br /><searchLink fieldCode="AU" term="%22Li+N%22">Li N</searchLink>; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA.<br /><searchLink fieldCode="AU" term="%22Pakbaz+Z%22">Pakbaz Z</searchLink>; Division of Hematology Oncology, University of California Irvine School of Medicine, Orange, CA, USA.<br /><searchLink fieldCode="AU" term="%22Shah+FT%22">Shah FT</searchLink>; NHS Blood and Transplant, London, UK.<br /><searchLink fieldCode="AU" term="%22Ainsworth+N%22">Ainsworth N</searchLink>; QC Medica, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Martin+AP%22">Martin AP</searchLink>; QC Medica, Liverpool, UK.
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%229210257%22">Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation</searchLink> [Qual Life Res] 2025 Jul; Vol. 34 (7), pp. 2019-2029. <i>Date of Electronic Publication: </i>2025 Apr 17.
– Name: TypePub
  Label: Publication Type
  Group: TypPub
  Data: Journal Article
– Name: TitleSource
  Label: Journal Info
  Group: Src
  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Netherlands%22">Springer Netherlands </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>9210257 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1573-2649 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209629343%22">09629343 </searchLink><i>NLM ISO Abbreviation: </i>Qual Life Res <i>Subsets: </i>MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=40246806
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1007/s11136-025-03963-6
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        StartPage: 2019
    Titles:
      – TitleFull: Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Drahos J
      – PersonEntity:
          Name:
            NameFull: Boateng-Kuffour A
      – PersonEntity:
          Name:
            NameFull: Calvert M
      – PersonEntity:
          Name:
            NameFull: Valentine A
      – PersonEntity:
          Name:
            NameFull: Mason A
      – PersonEntity:
          Name:
            NameFull: Li N
      – PersonEntity:
          Name:
            NameFull: Pakbaz Z
      – PersonEntity:
          Name:
            NameFull: Shah FT
      – PersonEntity:
          Name:
            NameFull: Ainsworth N
      – PersonEntity:
          Name:
            NameFull: Martin AP
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 07
              Text: 2025 Jul
              Type: published
              Y: 2025
          Identifiers:
            – Type: issn-electronic
              Value: 1573-2649
          Numbering:
            – Type: volume
              Value: 34
            – Type: issue
              Value: 7
          Titles:
            – TitleFull: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
              Type: main
ResultId 1