Establishing the content validity of patient-reported outcome measures used in neuro-oncology based on the WHO ICF framework: Part of the RANO-PRO initiative.

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Title: Establishing the content validity of patient-reported outcome measures used in neuro-oncology based on the WHO ICF framework: Part of the RANO-PRO initiative.
Authors: Asogwa OA; Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands., Dirven L; Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands., Walbert T; Department of Neurology and Neurosurgery, Henry Ford Health System, Wayne State University and Michigan State University, Detroit, Michigan, USA., Armstrong TS; Neuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA., Arons D; National Brain Tumor Society, Newton, Massachusetts, USA., van den Bent MJ; Department of Neurology, Erasmus MC Cancer Institute, Rotterdam, the Netherlands., Blakeley J; Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Coomans MB; Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands., Brown PD; Department of Radiation Oncology, Mayo Clinic, Rochester, Minnesota, USA., Bulbeck H; Brainstrust-The Brain Cancer People, Cowes, Isle of Wight, UK., Chang SM; Division of Neuro-Oncology, Department of Neurological Surgery, University of California, San Francisco, California, USA and UCSF Brain Tumor Center, University of California, San Francisco, California, USA., Coens C; Statistical Department, European Organization for Research and Treatment of Cancer Headquarters, Brussels, Belgium., Gilbert MR; Neuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA., Grant R; Department of Clinical Neurosciences, Royal Infirmary of Edinburgh, Edinburgh, UK., Jalali R; Neuro-Oncology Cancer Management Team, Apollo Proton Cancer Centre, Chennai, India., Koekkoek JAF; Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands., Panda PK; Clinical Research Secretariat, Apollo Proton Cancer Centre, Chennai, India., Leach D; National Brain Tumor Society, Newton, Massachusetts, USA., Leeper H; Department of Neurology and Department of Medicine, Section of Geriatrics and Palliative Medicine, University of Chicago, Chicago, Illinois, USA., Mendoza T; Office of Patient-Centered Outcomes Research, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA., Nayak L; Center for Neuro-Oncology, Dana-Farber Cancer Institute, Boston, Massachusetts, USA., Oliver K; International Brain Tumour Alliance, Tadworth, Surrey, UK., Reijneveld JC; Department of Neurology, Stichting Epilepsie Instellingen Nederland (SEIN), Heemstede, the Netherlands.; Department of Neurology and Brain Tumor Center Amsterdam, Amsterdam University Medical Centers, Amsterdam, the Netherlands., Le Rhun E; Department of Neurology, Clinical Neuroscience Center, University Hospital and University of Zurich, Zurich, Switzerland.; Department of Neurosurgery, Clinical Neuroscience Center, University Hospital and University of Zurich, Zurich, Switzerland., Rubinstein L; Biometric Research Program, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA., Taylor JW; Division of Neuro-Oncology, Department of Neurological Surgery, University of California, San Francisco, California, USA and UCSF Brain Tumor Center, University of California, San Francisco, California, USA., Weller M; Department of Neurology, Clinical Neuroscience Center, University Hospital and University of Zurich, Zurich, Switzerland., Wen PY; Center for Neuro-Oncology, Dana-Farber Cancer Institute, Boston, Massachusetts, USA., Taphoorn MJB; Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands.
Source: Neuro-oncology [Neuro Oncol] 2025 Oct 14; Vol. 27 (9), pp. 2399-2414.
Publication Type: Journal Article; Validation Study
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 100887420 Publication Model: Print Cited Medium: Internet ISSN: 1523-5866 (Electronic) Linking ISSN: 15228517 NLM ISO Abbreviation: Neuro Oncol Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:1523-5866
DOI:10.1093/neuonc/noaf108