Covering medical care costs for participants in the eMERGE Network: Challenges for equity and implementation.

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Title: Covering medical care costs for participants in the eMERGE Network: Challenges for equity and implementation.
Authors: Rasmussen-Torvik LJ; Department of Preventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL; Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL. Electronic address: ljrtorvik@northwestern.edu., Bonini KE; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY., Harr MH; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA., Abbass MA; Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL., Bangash H; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN., Bland HT; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN., Boyd BM; Department of Pediatrics, Columbia University, New York, NY., Chung WK; Department of Pediatrics, Harvard Medical School, Boston, MA; Boston Children's Hospital, Boston, MA., Clayton EW; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN., Cohen SJ; Department of Medicine, Heersink School of Medicine, University of Alabama at Birmingham, Birmingham, AL., Connolly JJ; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA., Gascoigne C; Insittue for Public Health and Medicine, Vanderbilt University Medical Center, Nashville, TN., Hernandez V; Collaborative Research, Mountain Park Health Center, Phoenix, AZ., Holm IA; Department of Pediatrics, Harvard Medical School, Boston, MA; Boston Children's Hospital, Boston, MA., Horike-Pyne M; Department of Medicine, University of Washington School of Medicine, Seattle, WA., Jarvik GP; Department of Medicine, University of Washington School of Medicine, Seattle, WA., Karlson EW; Department of Medicine, Brigham and Women's Hospital, Boston, MA., Kullo IJ; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN., Limdi NA; Department of Neurology, Heersink School of Medicine, University of Alabama at Birmingham, Birmingham, AL., Maradik ME; Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL., McNally EM; Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL., Perez E; Department of Personalized Medicine, Brigham and Women's Hospital, Boston, MA., Prows CA; Department of Pediatrics, Cincinnati Children's Hospital Medical Center; University of Cincinnati, Cincinnati, OH., Shaibi GQ; Center for Health Promotion and Disease Prevention, Arizona State University, Phoenix, AZ., Weng C; Department of Biomedical Informatics, Columbia University, New York, NY., Rowley RK; Division of Genomic Medicine, National Human Genome Research Institute, Bethesda, MD., Peterson JF; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN., Linder JE; Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN., Sabatello M; Department of Medicine, Columbia University, New York, NY; Department of Medical Humanities and Ethics, Columbia University, New York, NY.
Source: Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2025 Aug; Vol. 27 (8), pp. 101457. Date of Electronic Publication: 2025 May 16.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE
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Electronic address: ljrtorvik@northwestern.edu.<br /><searchLink fieldCode="AU" term="%22Bonini+KE%22">Bonini KE</searchLink>; Institute for Genomic Health, Icahn School of Medicine at Mount Sinai, New York, NY.<br /><searchLink fieldCode="AU" term="%22Harr+MH%22">Harr MH</searchLink>; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.<br /><searchLink fieldCode="AU" term="%22Abbass+MA%22">Abbass MA</searchLink>; Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL.<br /><searchLink fieldCode="AU" term="%22Bangash+H%22">Bangash H</searchLink>; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Bland+HT%22">Bland HT</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN.<br /><searchLink fieldCode="AU" term="%22Boyd+BM%22">Boyd BM</searchLink>; Department of Pediatrics, Columbia University, New York, NY.<br /><searchLink fieldCode="AU" term="%22Chung+WK%22">Chung WK</searchLink>; Department of Pediatrics, Harvard Medical School, Boston, MA; Boston Children's Hospital, Boston, MA.<br /><searchLink fieldCode="AU" term="%22Clayton+EW%22">Clayton EW</searchLink>; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.<br /><searchLink fieldCode="AU" term="%22Cohen+SJ%22">Cohen SJ</searchLink>; Department of Medicine, Heersink School of Medicine, University of Alabama at Birmingham, Birmingham, AL.<br /><searchLink fieldCode="AU" term="%22Connolly+JJ%22">Connolly JJ</searchLink>; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.<br /><searchLink fieldCode="AU" term="%22Gascoigne+C%22">Gascoigne C</searchLink>; Insittue for Public Health and Medicine, Vanderbilt University Medical Center, Nashville, TN.<br /><searchLink fieldCode="AU" term="%22Hernandez+V%22">Hernandez V</searchLink>; Collaborative Research, Mountain Park Health Center, Phoenix, AZ.<br /><searchLink fieldCode="AU" term="%22Holm+IA%22">Holm IA</searchLink>; Department of Pediatrics, Harvard Medical School, Boston, MA; Boston Children's Hospital, Boston, MA.<br /><searchLink fieldCode="AU" term="%22Horike-Pyne+M%22">Horike-Pyne M</searchLink>; Department of Medicine, University of Washington School of Medicine, Seattle, WA.<br /><searchLink fieldCode="AU" term="%22Jarvik+GP%22">Jarvik GP</searchLink>; Department of Medicine, University of Washington School of Medicine, Seattle, WA.<br /><searchLink fieldCode="AU" term="%22Karlson+EW%22">Karlson EW</searchLink>; Department of Medicine, Brigham and Women's Hospital, Boston, MA.<br /><searchLink fieldCode="AU" term="%22Kullo+IJ%22">Kullo IJ</searchLink>; Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN.<br /><searchLink fieldCode="AU" term="%22Limdi+NA%22">Limdi NA</searchLink>; Department of Neurology, Heersink School of Medicine, University of Alabama at Birmingham, Birmingham, AL.<br /><searchLink fieldCode="AU" term="%22Maradik+ME%22">Maradik ME</searchLink>; Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.<br /><searchLink fieldCode="AU" term="%22McNally+EM%22">McNally EM</searchLink>; Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.<br /><searchLink fieldCode="AU" term="%22Perez+E%22">Perez E</searchLink>; Department of Personalized Medicine, Brigham and Women's Hospital, Boston, MA.<br /><searchLink fieldCode="AU" term="%22Prows+CA%22">Prows CA</searchLink>; Department of Pediatrics, Cincinnati Children's Hospital Medical Center; University of Cincinnati, Cincinnati, OH.<br /><searchLink fieldCode="AU" term="%22Shaibi+GQ%22">Shaibi GQ</searchLink>; Center for Health Promotion and Disease Prevention, Arizona State University, Phoenix, AZ.<br /><searchLink fieldCode="AU" term="%22Weng+C%22">Weng C</searchLink>; Department of Biomedical Informatics, Columbia University, New York, NY.<br /><searchLink fieldCode="AU" term="%22Rowley+RK%22">Rowley RK</searchLink>; Division of Genomic Medicine, National Human Genome Research Institute, Bethesda, MD.<br /><searchLink fieldCode="AU" term="%22Peterson+JF%22">Peterson JF</searchLink>; Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN.<br /><searchLink fieldCode="AU" term="%22Linder+JE%22">Linder JE</searchLink>; Vanderbilt Institute of Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN.<br /><searchLink fieldCode="AU" term="%22Sabatello+M%22">Sabatello M</searchLink>; Department of Medicine, Columbia University, New York, NY; Department of Medical Humanities and Ethics, Columbia University, New York, NY.
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