MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy.
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| Title: | MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy. |
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| Authors: | Fanciulli A; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. alessandra.fanciulli@i-med.ac.at., Caliò B; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Schmidt S; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Goebel G; EPICENTER - Institute of Clinical Epidemiology, Public Health, Health Economics, Medical Statistics and Informatics, Medical University of Innsbruck, Innsbruck, Austria., Leys F; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Radl K; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Breitegger C; Department of Health Care Ethics, University of Graz, Graz, Austria., Arvandi M; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria., Blum A; Department of Psychiatry, Psychotherapy, Psychosomatics, and Medical Psychology, University Clinic of Psychiatry II, Innsbruck Medical University, Innsbruck, Austria., Gabl C; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria., Galvan O; Department for Hearing, Speech and Voice Disorders, Medical University of Innsbruck, Innsbruck, Austria., Herms A; Neuro-Urology Unit, Department of Urology, Medical University of Innsbruck, Innsbruck, Austria., Högl B; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Holzner B; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria., Jagusch F; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Kiechl S; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Knoflach-Gabis A; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria., Koegl M; Department of Neurology, Medical University of Graz, Graz, Austria., Kuchin I; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria., Lorenzl S; Institute of Palliative Care, Paracelsus Medical University, Salzburg, Austria., Poewe W; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Prajczer S; Tyrolean Regional Institute for Integrated Palliative and Hospice Care, Tiroler Hospiz Gemeinschaft, Hall in Tirol, Austria., Rumpold G; Department of Psychiatry, Psychotherapy, Psychosomatics, and Medical Psychology, University Clinic of Psychiatry II, Innsbruck Medical University, Innsbruck, Austria., Schlager A; Department of Anesthesiology and Intensive Care Medicine, Medical University of Innsbruck, Innsbruck, Austria., Schrag A; Department of Neurology, University College London, London, UK., Seppi K; Department of Neurology, Provincial Hospital of Kufstein, Kufstein, Austria., Siebert U; Institute of Public Health, Medical Decision Making and Health Technology Assessment, Department of Public Health, Health Services Research and Health Technology Assessment, UMIT TIROL-University for Health Sciences and Technology, Hall in Tirol, Austria.; Institute for Technology Assessment and Department of Radiology, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA.; Center for Health Decision Science and Departments of Epidemiology and Health Policy & Management, Harvard T.H. Chan School of Public Health, Boston, MA, USA., Schönherr G; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Sroczynski G; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria., Schmidhuber M; Department of Health Care Ethics, University of Graz, Graz, Austria., Schwingenschuh P; Neuro-Urology Unit, Department of Urology, Medical University of Innsbruck, Innsbruck, Austria., Jahn B; University Clinic of Psychiatry I, Innsbruck Medical University, Innsbruck, Austria., Krismer F; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria., Wenning GK; Department of Neurology, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. |
| Source: | Journal of neural transmission (Vienna, Austria : 1996) [J Neural Transm (Vienna)] 2026 May; Vol. 133 (5), pp. 903-917. Date of Electronic Publication: 2025 May 24. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Springer-Verlag Country of Publication: Austria NLM ID: 9702341 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1435-1463 (Electronic) Linking ISSN: 03009564 NLM ISO Abbreviation: J Neural Transm (Vienna) Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1435-1463 |
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| DOI: | 10.1007/s00702-025-02933-z |
