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Osteogenesis imperfecta and the family: A qualitative analysis of the experiences of family and caregivers.

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Title: Osteogenesis imperfecta and the family: A qualitative analysis of the experiences of family and caregivers.
Authors: Colombo GM; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Wiese AD; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Mercado AE; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Shepherd WS; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Fynan M; Private Practice., Ayers K; Division of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center., Rork WC; Vagelos College of Physicians and Surgeons, Columbia University., Kostick-Quenet KM; Center for Medical Ethics and Health Policy, Baylor College of Medicine., Nguyen D; Department of Molecular and Human Genetics, Baylor College of Medicine., Schneider SC; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Morales JM; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Kazimi SI; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Cho HE; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine., Members Of The Bbdc, Murali CN; Department of Molecular and Human Genetics, Baylor College of Medicine., Robinson ME; Department of Pediatrics, University of Ottawa., Lee B; Department of Molecular and Human Genetics, Baylor College of Medicine., Sutton VR; Department of Molecular and Human Genetics, Baylor College of Medicine., Storch EA; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.
Source: Families, systems & health : the journal of collaborative family healthcare [Fam Syst Health] 2025 Sep; Vol. 43 (3), pp. 482-499. Date of Electronic Publication: 2025 Jul 10.
Publication Type: Journal Article
Journal Info: Publisher: Families, Systems & Health, Inc Country of Publication: United States NLM ID: 9610836 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1939-0602 (Electronic) Linking ISSN: 10917527 NLM ISO Abbreviation: Fam Syst Health Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Osteogenesis imperfecta and the family: A qualitative analysis of the experiences of family and caregivers.
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  Data: <searchLink fieldCode="AU" term="%22Colombo+GM%22">Colombo GM</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Wiese+AD%22">Wiese AD</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Mercado+AE%22">Mercado AE</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Shepherd+WS%22">Shepherd WS</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Fynan+M%22">Fynan M</searchLink>; Private Practice.<br /><searchLink fieldCode="AU" term="%22Ayers+K%22">Ayers K</searchLink>; Division of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center.<br /><searchLink fieldCode="AU" term="%22Rork+WC%22">Rork WC</searchLink>; Vagelos College of Physicians and Surgeons, Columbia University.<br /><searchLink fieldCode="AU" term="%22Kostick-Quenet+KM%22">Kostick-Quenet KM</searchLink>; Center for Medical Ethics and Health Policy, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Nguyen+D%22">Nguyen D</searchLink>; Department of Molecular and Human Genetics, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Schneider+SC%22">Schneider SC</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Morales+JM%22">Morales JM</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Kazimi+SI%22">Kazimi SI</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Cho+HE%22">Cho HE</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Members+Of+The+Bbdc%22">Members Of The Bbdc</searchLink><br /><searchLink fieldCode="AU" term="%22Murali+CN%22">Murali CN</searchLink>; Department of Molecular and Human Genetics, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Robinson+ME%22">Robinson ME</searchLink>; Department of Pediatrics, University of Ottawa.<br /><searchLink fieldCode="AU" term="%22Lee+B%22">Lee B</searchLink>; Department of Molecular and Human Genetics, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Sutton+VR%22">Sutton VR</searchLink>; Department of Molecular and Human Genetics, Baylor College of Medicine.<br /><searchLink fieldCode="AU" term="%22Storch+EA%22">Storch EA</searchLink>; Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine.
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  Data: <searchLink fieldCode="JN" term="%229610836%22">Families, systems & health : the journal of collaborative family healthcare</searchLink> [Fam Syst Health] 2025 Sep; Vol. 43 (3), pp. 482-499. <i>Date of Electronic Publication: </i>2025 Jul 10.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Families%2C+Systems+%26+Health%2C+Inc%22">Families, Systems & Health, Inc </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>9610836 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1939-0602 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2210917527%22">10917527 </searchLink><i>NLM ISO Abbreviation: </i>Fam Syst Health <i>Subsets: </i>MEDLINE
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              Text: 2025 Sep
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