Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study.

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Title: Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study.
Authors: Hessels J; Pulmonology Department, St. Antonius Hospital, Nieuwegein, The Netherlands. j.hessels@antoniusziekenhuis.nl., Post MC; VASCERN HHT European Reference Centre and Department of Cardiology, St. Antonius Hospital, Nieuwegein, The Netherlands.; Division of Heart and Lungs, University Medical Centre Utrecht, Utrecht, The Netherlands., Boerman S; Pulmonology Department, St. Antonius Hospital, Nieuwegein, The Netherlands., Droege F; VASCERN HHT European Reference Centre and Otorhinolaryngology Department, Essen University Hospital, Essen, Germany., Dupuis O; Department of Obstetrics and Gynecology, Hospices Civils de Lyon, Lyon, France., Geisthoff UW; VASCERN HHT European Reference Centre and Department of Otorhinolaryngology, Head and Neck Surgey, University Hospital of Marburg and Phillips Universität Marburg, Marburg, Germany., Haahr PD; VASCERN HHT European Reference Centre and Department of Otorhinolaryngology Head and Neck Surgery, Odense University Hospital, Odense, Denmark., Kjeldsen AD; VASCERN HHT European Reference Centre OUH and Department of Otorhinolaryngology Head and Neck Surgery, Odense University Hospital, Odense, Denmark., Mager JJ; VASCERN HHT European Reference Centre and Department of Pulmonology, St. Antonius Hospital, Nieuwegein, The Netherlands., Dupuis-Girod S; VASCERN HHT European Reference Centre and Hospices Civils de Lyon, HHT National Reference Center and Genetic Department, Hôpital Femme-Mère-Enfants, Bron, France., Buscarini E; VASCERN HHT European Reference Centre and Department of Gastroenterology, ASST Ospedale Maggiore Crema, Crema, Italy.
Corporate Authors: ePAG
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Aug 01; Vol. 20 (1), pp. 395. Date of Electronic Publication: 2025 Aug 01.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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Description
ISSN:1750-1172
DOI:10.1186/s13023-025-03887-x