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Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study.

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Title: Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study.
Authors: Hessels J; Pulmonology Department, St. Antonius Hospital, Nieuwegein, The Netherlands. j.hessels@antoniusziekenhuis.nl., Post MC; VASCERN HHT European Reference Centre and Department of Cardiology, St. Antonius Hospital, Nieuwegein, The Netherlands.; Division of Heart and Lungs, University Medical Centre Utrecht, Utrecht, The Netherlands., Boerman S; Pulmonology Department, St. Antonius Hospital, Nieuwegein, The Netherlands., Droege F; VASCERN HHT European Reference Centre and Otorhinolaryngology Department, Essen University Hospital, Essen, Germany., Dupuis O; Department of Obstetrics and Gynecology, Hospices Civils de Lyon, Lyon, France., Geisthoff UW; VASCERN HHT European Reference Centre and Department of Otorhinolaryngology, Head and Neck Surgey, University Hospital of Marburg and Phillips Universität Marburg, Marburg, Germany., Haahr PD; VASCERN HHT European Reference Centre and Department of Otorhinolaryngology Head and Neck Surgery, Odense University Hospital, Odense, Denmark., Kjeldsen AD; VASCERN HHT European Reference Centre OUH and Department of Otorhinolaryngology Head and Neck Surgery, Odense University Hospital, Odense, Denmark., Mager JJ; VASCERN HHT European Reference Centre and Department of Pulmonology, St. Antonius Hospital, Nieuwegein, The Netherlands., Dupuis-Girod S; VASCERN HHT European Reference Centre and Hospices Civils de Lyon, HHT National Reference Center and Genetic Department, Hôpital Femme-Mère-Enfants, Bron, France., Buscarini E; VASCERN HHT European Reference Centre and Department of Gastroenterology, ASST Ospedale Maggiore Crema, Crema, Italy.
Corporate Authors: ePAG
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Aug 01; Vol. 20 (1), pp. 395. Date of Electronic Publication: 2025 Aug 01.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study.
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  Data: <searchLink fieldCode="AU" term="%22Hessels+J%22">Hessels J</searchLink>; Pulmonology Department, St. Antonius Hospital, Nieuwegein, The Netherlands. j.hessels@antoniusziekenhuis.nl.<br /><searchLink fieldCode="AU" term="%22Post+MC%22">Post MC</searchLink>; VASCERN HHT European Reference Centre and Department of Cardiology, St. Antonius Hospital, Nieuwegein, The Netherlands.; Division of Heart and Lungs, University Medical Centre Utrecht, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Boerman+S%22">Boerman S</searchLink>; Pulmonology Department, St. Antonius Hospital, Nieuwegein, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Droege+F%22">Droege F</searchLink>; VASCERN HHT European Reference Centre and Otorhinolaryngology Department, Essen University Hospital, Essen, Germany.<br /><searchLink fieldCode="AU" term="%22Dupuis+O%22">Dupuis O</searchLink>; Department of Obstetrics and Gynecology, Hospices Civils de Lyon, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Geisthoff+UW%22">Geisthoff UW</searchLink>; VASCERN HHT European Reference Centre and Department of Otorhinolaryngology, Head and Neck Surgey, University Hospital of Marburg and Phillips Universität Marburg, Marburg, Germany.<br /><searchLink fieldCode="AU" term="%22Haahr+PD%22">Haahr PD</searchLink>; VASCERN HHT European Reference Centre and Department of Otorhinolaryngology Head and Neck Surgery, Odense University Hospital, Odense, Denmark.<br /><searchLink fieldCode="AU" term="%22Kjeldsen+AD%22">Kjeldsen AD</searchLink>; VASCERN HHT European Reference Centre OUH and Department of Otorhinolaryngology Head and Neck Surgery, Odense University Hospital, Odense, Denmark.<br /><searchLink fieldCode="AU" term="%22Mager+JJ%22">Mager JJ</searchLink>; VASCERN HHT European Reference Centre and Department of Pulmonology, St. Antonius Hospital, Nieuwegein, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Dupuis-Girod+S%22">Dupuis-Girod S</searchLink>; VASCERN HHT European Reference Centre and Hospices Civils de Lyon, HHT National Reference Center and Genetic Department, Hôpital Femme-Mère-Enfants, Bron, France.<br /><searchLink fieldCode="AU" term="%22Buscarini+E%22">Buscarini E</searchLink>; VASCERN HHT European Reference Centre and Department of Gastroenterology, ASST Ospedale Maggiore Crema, Crema, Italy.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2025 Aug 01; Vol. 20 (1), pp. 395. <i>Date of Electronic Publication: </i>2025 Aug 01.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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              Text: 2025 Aug 01
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