Rare kidney disease registries: A scoping review on characteristics and lessons learnt.
Saved in:
| Title: | Rare kidney disease registries: A scoping review on characteristics and lessons learnt. |
|---|---|
| Authors: | Mahdian SZ; Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran., Hooman N; Ali Asghar Clinical Research Development Centre (AACRDC), Department of Pediatrics, School of Medicine, Iran University of Medical Sciences, Tehran, Iran., Sheikhtaheri A; Health Management and Economics Research Centre, Health Management Research Institute, Iran University of Medical Sciences, Tehran, Iran.; Digital Health and Artificial Intelligence in Medicine Research Unit, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran. |
| Source: | Health information management : journal of the Health Information Management Association of Australia [Health Inf Manag] 2026 Jan; Vol. 55 (1), pp. 25-42. Date of Electronic Publication: 2025 Aug 23. |
| Publication Type: | Journal Article; Scoping Review |
| Journal Info: | Publisher: SAGE Publications Country of Publication: Australia NLM ID: 9438200 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1833-3575 (Electronic) Linking ISSN: 18333583 NLM ISO Abbreviation: Health Inf Manag Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| ISSN: | 1833-3575 |
|---|---|
| DOI: | 10.1177/18333583251357802 |
