Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.

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Title: Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.
Authors: Rico V; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA., Zelinsky M; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.; Cleveland Clinic Neurological Institute, Center for Neurological Restoration, Cleveland, OH, USA., Ford PJ; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA., Leverenz J; Cleveland Clinic, Lou Ruvo Center for Brain Health, Cleveland, OH, USA.; University of Washington, Department of Neurology, Seattle, WA, USA., Pillai JA; Cleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA., Miller JB; University of Washington, Department of Neurology, Seattle, WA, USA.; Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas, NV, USA., Martinez K; Cleveland Clinic, Center for Value-Based Care Research, Cleveland, OH, USA., Lerner AJ; Case Western Reserve University Hospital, Case Western Reserve University, Cleveland, OH, USA., Tousi B; Cleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA., Apostolova LG; Departments of Neurology, Radiology, Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, IN, USA., Arias JJ; Georgia State University, School of Public Health Health Policy & Behavioral Sciences, Atlanta, GA, USA., Bolton CJ; Vanderbilt Memory and Alzheimer's Center, Vanderbilt University Medical Center, Nashville, TN, USA., Brewer AA; Departments of Cognitive Sciences and Language Science (by Courtesy), Center for Hearing Research, University of California Irvine, Irvine, CA, USA., Bridgeman K; Edinburgh Dementia Prevention, University of Edinburgh, Edinburgh, UK., Burns JM; University of Kansas City, University of Kansas Alzheimer's Disease Research Center, Kansas City, MO, USA., Butler T; Weill Cornell Medicine, Department of Radiology, New York, NY, USA., Dierickx K; KU Leuven Centre for Biomedical Ethics and Law, Kapucijnenvoer 7 / 7001 3000 Leuven, Leuven, Flanders, Belgium., Erickson CM; Banner Alzheimer's Institute, Phoenix, AZ, USA., Festari C; IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Laboratory of Alzheimer's Neuroimaging and Epidemiology, Brescia, Lombardy, Italy., Fitri FI; Department of Neurology, Faculty of Medicine, Universitas Sumatera Utara, Medan, Indonesia., Fowler NR; Department of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA., Gale SA; Brigham and Women's Hospital Department of Neurology, Center for Brain/Mind Medicine, Boston, MA, USA., Gao C; Department of Anesthesia, Critical Care and Pain Medicine, Massachusetts General Hospital, Boston, MA., Gallagher MD; Whitehead Institute for Biomedical Research, Cambridge, MA, USA., Johnson KG; Duke University, Department of Neurology, Durham, NC, USA., Morris JK; University of Kansas Medical Center, Department of Neurology, KU Alzheimer's Disease Research Center, Kansas City, KS, USA., Porteri C; IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Bioethics Unit, Brescia, Lombardy, Italy., Qiu C; Beth Israel Deaconess Medical Center Department of Neurology, Harvard Medical School, Boston, MA, USA., Rahman-Filipiak A; Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA., Rahemi Z; Clemson University School of Nursing, College of Behavioral, Social and Health, Clemson, SC, USA., Richard E; Department of Neurology, Radboud University Donders Institute for Brain Cognition and Behaviour, Nijmegen, The Netherlands., Schaeverbeke J; Neuroscience, KU Leuven, Leuven, Belgium.; Laboratory of Neuropathology, Department of Imaging and Pathology Leuven Brain Institute Leuven, KU Leuven, Flanders, Belgium., Stern Y; Cognitive Neuroscience Division, Columbia University Vagelos College of Physicians and Surgeons, New York, NY, USA., Suver C; Sage Bionetworks, 2901 Third Ave., suite 330, Seattle, WA, USA., Trenaman S; Faculty of Health, College of Pharmacy, Dalhousie University, Halifax, NS, Canada., Blasi MT; Department of Human Neuroscience, University of Rome La Sapienza, Rome, Lazio, Italy., Vandenberghe R; KU Leuven, Laboratory for Cognitive Neurology, Alzheimer Research Centre & University Hospitals Leuven, Neurology Service, Leuven, Flanders, Belgium., Walter S; University of Southern California Alzheimer's Therapeutic Research Institute, San Diego, CA, USA., Williams K; The University of Kansas Medical Center, School of Nursing, Kansas City, KS, USA., Sankary LR; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.; Neurological Surgery, The University of Texas Southwestern Medical Center, Dallas, TX, USA.
Source: Journal of Alzheimer's disease : JAD [J Alzheimers Dis] 2025 Nov; Vol. 108 (2), pp. 703-718. Date of Electronic Publication: 2025 Sep 25.
Publication Type: Journal Article; Consensus Statement
Journal Info: Publisher: SAGE Publications Country of Publication: United States NLM ID: 9814863 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1875-8908 (Electronic) Linking ISSN: 13872877 NLM ISO Abbreviation: J Alzheimers Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
Description
ISSN:1875-8908
DOI:10.1177/13872877251379076