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Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.

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Title: Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.
Authors: Rico V; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA., Zelinsky M; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.; Cleveland Clinic Neurological Institute, Center for Neurological Restoration, Cleveland, OH, USA., Ford PJ; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA., Leverenz J; Cleveland Clinic, Lou Ruvo Center for Brain Health, Cleveland, OH, USA.; University of Washington, Department of Neurology, Seattle, WA, USA., Pillai JA; Cleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA., Miller JB; University of Washington, Department of Neurology, Seattle, WA, USA.; Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas, NV, USA., Martinez K; Cleveland Clinic, Center for Value-Based Care Research, Cleveland, OH, USA., Lerner AJ; Case Western Reserve University Hospital, Case Western Reserve University, Cleveland, OH, USA., Tousi B; Cleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA., Apostolova LG; Departments of Neurology, Radiology, Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, IN, USA., Arias JJ; Georgia State University, School of Public Health Health Policy & Behavioral Sciences, Atlanta, GA, USA., Bolton CJ; Vanderbilt Memory and Alzheimer's Center, Vanderbilt University Medical Center, Nashville, TN, USA., Brewer AA; Departments of Cognitive Sciences and Language Science (by Courtesy), Center for Hearing Research, University of California Irvine, Irvine, CA, USA., Bridgeman K; Edinburgh Dementia Prevention, University of Edinburgh, Edinburgh, UK., Burns JM; University of Kansas City, University of Kansas Alzheimer's Disease Research Center, Kansas City, MO, USA., Butler T; Weill Cornell Medicine, Department of Radiology, New York, NY, USA., Dierickx K; KU Leuven Centre for Biomedical Ethics and Law, Kapucijnenvoer 7 / 7001 3000 Leuven, Leuven, Flanders, Belgium., Erickson CM; Banner Alzheimer's Institute, Phoenix, AZ, USA., Festari C; IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Laboratory of Alzheimer's Neuroimaging and Epidemiology, Brescia, Lombardy, Italy., Fitri FI; Department of Neurology, Faculty of Medicine, Universitas Sumatera Utara, Medan, Indonesia., Fowler NR; Department of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA., Gale SA; Brigham and Women's Hospital Department of Neurology, Center for Brain/Mind Medicine, Boston, MA, USA., Gao C; Department of Anesthesia, Critical Care and Pain Medicine, Massachusetts General Hospital, Boston, MA., Gallagher MD; Whitehead Institute for Biomedical Research, Cambridge, MA, USA., Johnson KG; Duke University, Department of Neurology, Durham, NC, USA., Morris JK; University of Kansas Medical Center, Department of Neurology, KU Alzheimer's Disease Research Center, Kansas City, KS, USA., Porteri C; IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Bioethics Unit, Brescia, Lombardy, Italy., Qiu C; Beth Israel Deaconess Medical Center Department of Neurology, Harvard Medical School, Boston, MA, USA., Rahman-Filipiak A; Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA., Rahemi Z; Clemson University School of Nursing, College of Behavioral, Social and Health, Clemson, SC, USA., Richard E; Department of Neurology, Radboud University Donders Institute for Brain Cognition and Behaviour, Nijmegen, The Netherlands., Schaeverbeke J; Neuroscience, KU Leuven, Leuven, Belgium.; Laboratory of Neuropathology, Department of Imaging and Pathology Leuven Brain Institute Leuven, KU Leuven, Flanders, Belgium., Stern Y; Cognitive Neuroscience Division, Columbia University Vagelos College of Physicians and Surgeons, New York, NY, USA., Suver C; Sage Bionetworks, 2901 Third Ave., suite 330, Seattle, WA, USA., Trenaman S; Faculty of Health, College of Pharmacy, Dalhousie University, Halifax, NS, Canada., Blasi MT; Department of Human Neuroscience, University of Rome La Sapienza, Rome, Lazio, Italy., Vandenberghe R; KU Leuven, Laboratory for Cognitive Neurology, Alzheimer Research Centre & University Hospitals Leuven, Neurology Service, Leuven, Flanders, Belgium., Walter S; University of Southern California Alzheimer's Therapeutic Research Institute, San Diego, CA, USA., Williams K; The University of Kansas Medical Center, School of Nursing, Kansas City, KS, USA., Sankary LR; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.; Neurological Surgery, The University of Texas Southwestern Medical Center, Dallas, TX, USA.
Source: Journal of Alzheimer's disease : JAD [J Alzheimers Dis] 2025 Nov; Vol. 108 (2), pp. 703-718. Date of Electronic Publication: 2025 Sep 25.
Publication Type: Journal Article; Consensus Statement
Journal Info: Publisher: SAGE Publications Country of Publication: United States NLM ID: 9814863 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1875-8908 (Electronic) Linking ISSN: 13872877 NLM ISO Abbreviation: J Alzheimers Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
FullText Text:
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PubType: Academic Journal
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  Data: Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.
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  Data: <searchLink fieldCode="AU" term="%22Rico+V%22">Rico V</searchLink>; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Zelinsky+M%22">Zelinsky M</searchLink>; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.; Cleveland Clinic Neurological Institute, Center for Neurological Restoration, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Ford+PJ%22">Ford PJ</searchLink>; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Leverenz+J%22">Leverenz J</searchLink>; Cleveland Clinic, Lou Ruvo Center for Brain Health, Cleveland, OH, USA.; University of Washington, Department of Neurology, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Pillai+JA%22">Pillai JA</searchLink>; Cleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Miller+JB%22">Miller JB</searchLink>; University of Washington, Department of Neurology, Seattle, WA, USA.; Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas, NV, USA.<br /><searchLink fieldCode="AU" term="%22Martinez+K%22">Martinez K</searchLink>; Cleveland Clinic, Center for Value-Based Care Research, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Lerner+AJ%22">Lerner AJ</searchLink>; Case Western Reserve University Hospital, Case Western Reserve University, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Tousi+B%22">Tousi B</searchLink>; Cleveland Clinic Neurological Institute, Center for Brain Health, Cleveland Clinic, Cleveland, OH, USA.<br /><searchLink fieldCode="AU" term="%22Apostolova+LG%22">Apostolova LG</searchLink>; Departments of Neurology, Radiology, Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, IN, USA.<br /><searchLink fieldCode="AU" term="%22Arias+JJ%22">Arias JJ</searchLink>; Georgia State University, School of Public Health Health Policy & Behavioral Sciences, Atlanta, GA, USA.<br /><searchLink fieldCode="AU" term="%22Bolton+CJ%22">Bolton CJ</searchLink>; Vanderbilt Memory and Alzheimer's Center, Vanderbilt University Medical Center, Nashville, TN, USA.<br /><searchLink fieldCode="AU" term="%22Brewer+AA%22">Brewer AA</searchLink>; Departments of Cognitive Sciences and Language Science (by Courtesy), Center for Hearing Research, University of California Irvine, Irvine, CA, USA.<br /><searchLink fieldCode="AU" term="%22Bridgeman+K%22">Bridgeman K</searchLink>; Edinburgh Dementia Prevention, University of Edinburgh, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Burns+JM%22">Burns JM</searchLink>; University of Kansas City, University of Kansas Alzheimer's Disease Research Center, Kansas City, MO, USA.<br /><searchLink fieldCode="AU" term="%22Butler+T%22">Butler T</searchLink>; Weill Cornell Medicine, Department of Radiology, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Dierickx+K%22">Dierickx K</searchLink>; KU Leuven Centre for Biomedical Ethics and Law, Kapucijnenvoer 7 / 7001 3000 Leuven, Leuven, Flanders, Belgium.<br /><searchLink fieldCode="AU" term="%22Erickson+CM%22">Erickson CM</searchLink>; Banner Alzheimer's Institute, Phoenix, AZ, USA.<br /><searchLink fieldCode="AU" term="%22Festari+C%22">Festari C</searchLink>; IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Laboratory of Alzheimer's Neuroimaging and Epidemiology, Brescia, Lombardy, Italy.<br /><searchLink fieldCode="AU" term="%22Fitri+FI%22">Fitri FI</searchLink>; Department of Neurology, Faculty of Medicine, Universitas Sumatera Utara, Medan, Indonesia.<br /><searchLink fieldCode="AU" term="%22Fowler+NR%22">Fowler NR</searchLink>; Department of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.<br /><searchLink fieldCode="AU" term="%22Gale+SA%22">Gale SA</searchLink>; Brigham and Women's Hospital Department of Neurology, Center for Brain/Mind Medicine, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Gao+C%22">Gao C</searchLink>; Department of Anesthesia, Critical Care and Pain Medicine, Massachusetts General Hospital, Boston, MA.<br /><searchLink fieldCode="AU" term="%22Gallagher+MD%22">Gallagher MD</searchLink>; Whitehead Institute for Biomedical Research, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Johnson+KG%22">Johnson KG</searchLink>; Duke University, Department of Neurology, Durham, NC, USA.<br /><searchLink fieldCode="AU" term="%22Morris+JK%22">Morris JK</searchLink>; University of Kansas Medical Center, Department of Neurology, KU Alzheimer's Disease Research Center, Kansas City, KS, USA.<br /><searchLink fieldCode="AU" term="%22Porteri+C%22">Porteri C</searchLink>; IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Bioethics Unit, Brescia, Lombardy, Italy.<br /><searchLink fieldCode="AU" term="%22Qiu+C%22">Qiu C</searchLink>; Beth Israel Deaconess Medical Center Department of Neurology, Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Rahman-Filipiak+A%22">Rahman-Filipiak A</searchLink>; Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA.<br /><searchLink fieldCode="AU" term="%22Rahemi+Z%22">Rahemi Z</searchLink>; Clemson University School of Nursing, College of Behavioral, Social and Health, Clemson, SC, USA.<br /><searchLink fieldCode="AU" term="%22Richard+E%22">Richard E</searchLink>; Department of Neurology, Radboud University Donders Institute for Brain Cognition and Behaviour, Nijmegen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Schaeverbeke+J%22">Schaeverbeke J</searchLink>; Neuroscience, KU Leuven, Leuven, Belgium.; Laboratory of Neuropathology, Department of Imaging and Pathology Leuven Brain Institute Leuven, KU Leuven, Flanders, Belgium.<br /><searchLink fieldCode="AU" term="%22Stern+Y%22">Stern Y</searchLink>; Cognitive Neuroscience Division, Columbia University Vagelos College of Physicians and Surgeons, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Suver+C%22">Suver C</searchLink>; Sage Bionetworks, 2901 Third Ave., suite 330, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Trenaman+S%22">Trenaman S</searchLink>; Faculty of Health, College of Pharmacy, Dalhousie University, Halifax, NS, Canada.<br /><searchLink fieldCode="AU" term="%22Blasi+MT%22">Blasi MT</searchLink>; Department of Human Neuroscience, University of Rome La Sapienza, Rome, Lazio, Italy.<br /><searchLink fieldCode="AU" term="%22Vandenberghe+R%22">Vandenberghe R</searchLink>; KU Leuven, Laboratory for Cognitive Neurology, Alzheimer Research Centre & University Hospitals Leuven, Neurology Service, Leuven, Flanders, Belgium.<br /><searchLink fieldCode="AU" term="%22Walter+S%22">Walter S</searchLink>; University of Southern California Alzheimer's Therapeutic Research Institute, San Diego, CA, USA.<br /><searchLink fieldCode="AU" term="%22Williams+K%22">Williams K</searchLink>; The University of Kansas Medical Center, School of Nursing, Kansas City, KS, USA.<br /><searchLink fieldCode="AU" term="%22Sankary+LR%22">Sankary LR</searchLink>; Cleveland Clinic Neurological Institute, Neuroethics Program, Cleveland, OH, USA.; Neurological Surgery, The University of Texas Southwestern Medical Center, Dallas, TX, USA.
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