Disease modifying therapies for children with spinal muscular atrophy - parents' experiences of hopes, grief and need for rehabilitation for their child.
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| Title: | Disease modifying therapies for children with spinal muscular atrophy - parents' experiences of hopes, grief and need for rehabilitation for their child. |
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| Authors: | Handberg C; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.; Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark., Drivsholm PZ; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.; Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark., Werlauff U; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark., Lorenzen SOB; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark., Mahoney A; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark. |
| Source: | Journal of neuromuscular diseases [J Neuromuscul Dis] 2026 May; Vol. 13 (3), pp. 373-387. Date of Electronic Publication: 2025 Oct 30. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: IOS Press Country of Publication: United States NLM ID: 101649948 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 2214-3602 |
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| DOI: | 10.1177/22143602251392800 |
