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Disease modifying therapies for children with spinal muscular atrophy - parents' experiences of hopes, grief and need for rehabilitation for their child.

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Title: Disease modifying therapies for children with spinal muscular atrophy - parents' experiences of hopes, grief and need for rehabilitation for their child.
Authors: Handberg C; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.; Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark., Drivsholm PZ; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.; Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark., Werlauff U; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark., Lorenzen SOB; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark., Mahoney A; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.
Source: Journal of neuromuscular diseases [J Neuromuscul Dis] 2026 May; Vol. 13 (3), pp. 373-387. Date of Electronic Publication: 2025 Oct 30.
Publication Type: Journal Article
Journal Info: Publisher: IOS Press Country of Publication: United States NLM ID: 101649948 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Disease modifying therapies for children with spinal muscular atrophy - parents' experiences of hopes, grief and need for rehabilitation for their child.
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  Data: <searchLink fieldCode="AU" term="%22Handberg+C%22">Handberg C</searchLink>; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.; Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Drivsholm+PZ%22">Drivsholm PZ</searchLink>; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.; Department of Public Health, Faculty of Health, Aarhus University, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Werlauff+U%22">Werlauff U</searchLink>; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Lorenzen+SOB%22">Lorenzen SOB</searchLink>; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Mahoney+A%22">Mahoney A</searchLink>; National Rehabilitation Center for Neuromuscular Diseases, Aarhus, Denmark.
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  Data: <searchLink fieldCode="JN" term="%22101649948%22">Journal of neuromuscular diseases</searchLink> [J Neuromuscul Dis] 2026 May; Vol. 13 (3), pp. 373-387. <i>Date of Electronic Publication: </i>2025 Oct 30.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22IOS+Press%22">IOS Press </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101649948 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>2214-3602 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2222143599%22">22143599 </searchLink><i>NLM ISO Abbreviation: </i>J Neuromuscul Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1177/22143602251392800
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      – Code: eng
        Text: English
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        StartPage: 373
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      – TitleFull: Disease modifying therapies for children with spinal muscular atrophy - parents' experiences of hopes, grief and need for rehabilitation for their child.
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            NameFull: Handberg C
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            NameFull: Drivsholm PZ
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            NameFull: Werlauff U
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            – D: 01
              M: 05
              Text: 2026 May
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              Y: 2026
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              Value: 2214-3602
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              Value: 13
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            – TitleFull: Journal of neuromuscular diseases
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