Building capacity for patient-engagement in neuromuscular disease research: A network project.
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| Title: | Building capacity for patient-engagement in neuromuscular disease research: A network project. |
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| Authors: | Mortenson P; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada.; Department of Occupational Science & Occupational Therapy, University of British Columbia, Vancouver, Canada.; Department of Occupational Therapy, British Columbia Children's Hospital, Vancouver, Canada., Osman H; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada.; Muscular Dystrophy Canada, Toronto, Canada., Beattie E; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada., Kagan C; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada., Larocca V; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada.; Muscular Dystrophy Canada, Toronto, Canada., Maltais C; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada., Niksic L; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada., Thompson M; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada., Selby K; Neuromuscular Disease Network for Canada, Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada.; Division of Neurology, British Columbia Children's Hospital, Vancouver, Canada.; Faculty of Medicine, Department of Pediatrics, University of British Columbia, Vancouver, Canada. |
| Source: | Journal of neuromuscular diseases [J Neuromuscul Dis] 2026 May; Vol. 13 (3), pp. 462-473. Date of Electronic Publication: 2025 Dec 16. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: IOS Press Country of Publication: United States NLM ID: 101649948 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2214-3602 (Electronic) Linking ISSN: 22143599 NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 2214-3602 |
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| DOI: | 10.1177/22143602251405819 |
