What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.

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Title: What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.
Authors: Chambers RL; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK., Tunnard I; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK., Scott H; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK., Fraser LK; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.; Department of Women and Children's Health, School of Life Course and Population Health, Faculty of Life Sciences and Medicine, King's College London, UK., Sleeman KE; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.; King's College Hospital NHS Foundation Trust, London, UK.
Source: Palliative medicine [Palliat Med] 2026 Mar; Vol. 40 (3), pp. 314-332. Date of Electronic Publication: 2026 Jan 13.
Publication Type: Journal Article; Review
Journal Info: Publisher: SAGE Publications Country of Publication: England NLM ID: 8704926 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1477-030X (Electronic) Linking ISSN: 02692163 NLM ISO Abbreviation: Palliat Med Subsets: MEDLINE; In Process
Database: MEDLINE Ultimate
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ISSN:1477-030X
DOI:10.1177/02692163251405370