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What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.

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Title: What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.
Authors: Chambers RL; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK., Tunnard I; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK., Scott H; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK., Fraser LK; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.; Department of Women and Children's Health, School of Life Course and Population Health, Faculty of Life Sciences and Medicine, King's College London, UK., Sleeman KE; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.; King's College Hospital NHS Foundation Trust, London, UK.
Source: Palliative medicine [Palliat Med] 2026 Mar; Vol. 40 (3), pp. 314-332. Date of Electronic Publication: 2026 Jan 13.
Publication Type: Journal Article; Review
Journal Info: Publisher: SAGE Publications Country of Publication: England NLM ID: 8704926 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1477-030X (Electronic) Linking ISSN: 02692163 NLM ISO Abbreviation: Palliat Med Subsets: MEDLINE; In Process
Database: MEDLINE Ultimate
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  Data: What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.
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  Data: <searchLink fieldCode="AU" term="%22Chambers+RL%22">Chambers RL</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.<br /><searchLink fieldCode="AU" term="%22Tunnard+I%22">Tunnard I</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.<br /><searchLink fieldCode="AU" term="%22Scott+H%22">Scott H</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.<br /><searchLink fieldCode="AU" term="%22Fraser+LK%22">Fraser LK</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.; Department of Women and Children's Health, School of Life Course and Population Health, Faculty of Life Sciences and Medicine, King's College London, UK.<br /><searchLink fieldCode="AU" term="%22Sleeman+KE%22">Sleeman KE</searchLink>; Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK.; King's College Hospital NHS Foundation Trust, London, UK.
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  Data: <searchLink fieldCode="JN" term="%228704926%22">Palliative medicine</searchLink> [Palliat Med] 2026 Mar; Vol. 40 (3), pp. 314-332. <i>Date of Electronic Publication: </i>2026 Jan 13.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22SAGE+Publications%22">SAGE Publications </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>8704926 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1477-030X (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2202692163%22">02692163 </searchLink><i>NLM ISO Abbreviation: </i>Palliat Med <i>Subsets: </i>MEDLINE; In Process
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        Value: 10.1177/02692163251405370
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      – Code: eng
        Text: English
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              Text: 2026 Mar
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