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Quality of Life in Patients With Variant Syndromes of Autoimmune Liver Diseases-A Cross-Sectional Multicentre Study.

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Title: Quality of Life in Patients With Variant Syndromes of Autoimmune Liver Diseases-A Cross-Sectional Multicentre Study.
Authors: Uhlenbusch N; Department of Psychosomatic Medicine and Psychotherapy, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany., Snijders RJALM; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Radboud University Medical Centre, Nijmegen, the Netherlands., Mund M; Martin Zeitz Centre for Rare Diseases, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany., Janik MK; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology, Transplantology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland., Milkiewicz P; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology, Transplantology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland.; Translational Medicine Group, Pomeranian Medical University, Szczecin, Poland., Löwe B; Department of Psychosomatic Medicine and Psychotherapy, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany., Kroll C; Martin Zeitz Centre for Rare Diseases, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany., Raszeja-Wyszomirska J; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology, Transplantology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland., Gerussi A; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy., Bolis F; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy., Cristoferi L; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy., Invernizzi P; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy., Kovats P; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Department of Internal Medicine, Faculty of Medicine, University of Debrecen, Debrecen, Hungary.; Kálmán Laki Doctoral School, Faculty of Medicine, University of Debrecen, Debrecen, Hungary., Papp M; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Department of Internal Medicine, Faculty of Medicine, University of Debrecen, Debrecen, Hungary., Grønbæk L; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark.; Department of Medicine, Regional Hospital Horsens, Horsens, Denmark., Grønbæk H; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark., Tjwa ETTL; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Radboud University Medical Centre, Nijmegen, the Netherlands., Aamann L; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Hvidovre University Hospital Copenhagen, Hvidovre, Denmark., Ytting H; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Hvidovre University Hospital Copenhagen, Hvidovre, Denmark.; Department of Clinical Medicine, Faculty of Health Sciences, University of Copenhagen, Copenhagen, Denmark., Ronca V; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Transplant and Hepatobiliary Unit, Queen Elizabeth Hospital, University Hospital of Birmingham NHS Foundation Trust & Centre for Liver and Gastro Research, NIHR Biomedical Research Centre, Institute of Immunology and Immunotherapy, University of Birmingham, Birmingham, UK., Olsen K; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Transplant and Hepatobiliary Unit, Queen Elizabeth Hospital, University Hospital of Birmingham NHS Foundation Trust & Centre for Liver and Gastro Research, NIHR Biomedical Research Centre, Institute of Immunology and Immunotherapy, University of Birmingham, Birmingham, UK., Oo YH; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Transplant and Hepatobiliary Unit, Queen Elizabeth Hospital, University Hospital of Birmingham NHS Foundation Trust & Centre for Liver and Gastro Research, NIHR Biomedical Research Centre, Institute of Immunology and Immunotherapy, University of Birmingham, Birmingham, UK., van der Meer AJ; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Erasmus University Medical Centre, Rotterdam, the Netherlands., Madaleno J; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Disease Unit, Department of Internal Medicine, Hospitais da Universidade de Coimbra, Unidade Local de Saúde de Coimbra, Coimbra, Portugal.; Liver Transplant Unit, Hospitais da Universidade de Coimbra, Unidade Local de Saúde de Coimbra, Faculty of Medicine, University of Coimbra, Coimbra, Portugal., Canhão B; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Disease Unit, Department of Internal Medicine, Hospitais da Universidade de Coimbra, Unidade Local de Saúde de Coimbra, Coimbra, Portugal., Engel B; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany., Campos-Murguia A; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany., Taubert R; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany., Koc ÖM; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, MUMC+, Maastricht, the Netherlands., Kramer M; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, MUMC+, Maastricht, the Netherlands.; GROW-School for Oncology and Reproduction, Maastricht University, Maastricht, the Netherlands., Willemse JA; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Dutch Liver Patients Association, Amersfoort, the Netherlands., Lohse AW; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; I. Department of Medicine, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany., Drenth JPH; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Amsterdam UMC, Amsterdam, the Netherlands., Gevers TJG; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, MUMC+, Maastricht, the Netherlands.; Nutrim School for Nutrition and Translational Research in Metabolism, Maastricht University, Maastricht, the Netherlands., Schramm C; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Martin Zeitz Centre for Rare Diseases, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.; I. Department of Medicine, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.
Source: Liver international : official journal of the International Association for the Study of the Liver [Liver Int] 2026 Mar; Vol. 46 (3), pp. e70526.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 101160857 Publication Model: Print Cited Medium: Internet ISSN: 1478-3231 (Electronic) Linking ISSN: 14783223 NLM ISO Abbreviation: Liver Int Subsets: MEDLINE
Database: MEDLINE Ultimate
FullText Text:
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PubType: Academic Journal
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  Data: Quality of Life in Patients With Variant Syndromes of Autoimmune Liver Diseases-A Cross-Sectional Multicentre Study.
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  Data: <searchLink fieldCode="AU" term="%22Uhlenbusch+N%22">Uhlenbusch N</searchLink>; Department of Psychosomatic Medicine and Psychotherapy, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Snijders+RJALM%22">Snijders RJALM</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Radboud University Medical Centre, Nijmegen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Mund+M%22">Mund M</searchLink>; Martin Zeitz Centre for Rare Diseases, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Janik+MK%22">Janik MK</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology, Transplantology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Milkiewicz+P%22">Milkiewicz P</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology, Transplantology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland.; Translational Medicine Group, Pomeranian Medical University, Szczecin, Poland.<br /><searchLink fieldCode="AU" term="%22Löwe+B%22">Löwe B</searchLink>; Department of Psychosomatic Medicine and Psychotherapy, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Kroll+C%22">Kroll C</searchLink>; Martin Zeitz Centre for Rare Diseases, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Raszeja-Wyszomirska+J%22">Raszeja-Wyszomirska J</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology, Transplantology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Gerussi+A%22">Gerussi A</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Bolis+F%22">Bolis F</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Cristoferi+L%22">Cristoferi L</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Invernizzi+P%22">Invernizzi P</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Center for Autoimmune Liver Diseases, European Reference Network on Hepatological Diseases (ERN RARE-LIVER), IRCCS Fondazione San Gerardo Dei Tintori, Monza, Italy.; Department of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy.<br /><searchLink fieldCode="AU" term="%22Kovats+P%22">Kovats P</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Department of Internal Medicine, Faculty of Medicine, University of Debrecen, Debrecen, Hungary.; Kálmán Laki Doctoral School, Faculty of Medicine, University of Debrecen, Debrecen, Hungary.<br /><searchLink fieldCode="AU" term="%22Papp+M%22">Papp M</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Division of Gastroenterology, Department of Internal Medicine, Faculty of Medicine, University of Debrecen, Debrecen, Hungary.<br /><searchLink fieldCode="AU" term="%22Grønbæk+L%22">Grønbæk L</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark.; Department of Medicine, Regional Hospital Horsens, Horsens, Denmark.<br /><searchLink fieldCode="AU" term="%22Grønbæk+H%22">Grønbæk H</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Tjwa+ETTL%22">Tjwa ETTL</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Radboud University Medical Centre, Nijmegen, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Aamann+L%22">Aamann L</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Hvidovre University Hospital Copenhagen, Hvidovre, Denmark.<br /><searchLink fieldCode="AU" term="%22Ytting+H%22">Ytting H</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Hvidovre University Hospital Copenhagen, Hvidovre, Denmark.; Department of Clinical Medicine, Faculty of Health Sciences, University of Copenhagen, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Ronca+V%22">Ronca V</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Transplant and Hepatobiliary Unit, Queen Elizabeth Hospital, University Hospital of Birmingham NHS Foundation Trust & Centre for Liver and Gastro Research, NIHR Biomedical Research Centre, Institute of Immunology and Immunotherapy, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Olsen+K%22">Olsen K</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Transplant and Hepatobiliary Unit, Queen Elizabeth Hospital, University Hospital of Birmingham NHS Foundation Trust & Centre for Liver and Gastro Research, NIHR Biomedical Research Centre, Institute of Immunology and Immunotherapy, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22Oo+YH%22">Oo YH</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Transplant and Hepatobiliary Unit, Queen Elizabeth Hospital, University Hospital of Birmingham NHS Foundation Trust & Centre for Liver and Gastro Research, NIHR Biomedical Research Centre, Institute of Immunology and Immunotherapy, University of Birmingham, Birmingham, UK.<br /><searchLink fieldCode="AU" term="%22van+der+Meer+AJ%22">van der Meer AJ</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Erasmus University Medical Centre, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Madaleno+J%22">Madaleno J</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Disease Unit, Department of Internal Medicine, Hospitais da Universidade de Coimbra, Unidade Local de Saúde de Coimbra, Coimbra, Portugal.; Liver Transplant Unit, Hospitais da Universidade de Coimbra, Unidade Local de Saúde de Coimbra, Faculty of Medicine, University of Coimbra, Coimbra, Portugal.<br /><searchLink fieldCode="AU" term="%22Canhão+B%22">Canhão B</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Liver Disease Unit, Department of Internal Medicine, Hospitais da Universidade de Coimbra, Unidade Local de Saúde de Coimbra, Coimbra, Portugal.<br /><searchLink fieldCode="AU" term="%22Engel+B%22">Engel B</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany.<br /><searchLink fieldCode="AU" term="%22Campos-Murguia+A%22">Campos-Murguia A</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany.<br /><searchLink fieldCode="AU" term="%22Taubert+R%22">Taubert R</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany.<br /><searchLink fieldCode="AU" term="%22Koc+ÖM%22">Koc ÖM</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, MUMC+, Maastricht, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Kramer+M%22">Kramer M</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, MUMC+, Maastricht, the Netherlands.; GROW-School for Oncology and Reproduction, Maastricht University, Maastricht, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Willemse+JA%22">Willemse JA</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Dutch Liver Patients Association, Amersfoort, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Lohse+AW%22">Lohse AW</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; I. Department of Medicine, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Drenth+JPH%22">Drenth JPH</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, Amsterdam UMC, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Gevers+TJG%22">Gevers TJG</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Department of Gastroenterology and Hepatology, MUMC+, Maastricht, the Netherlands.; Nutrim School for Nutrition and Translational Research in Metabolism, Maastricht University, Maastricht, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Schramm+C%22">Schramm C</searchLink>; European Reference Network on Hepatological Diseases (ERN RARE-LIVER), Hamburg, Germany.; Martin Zeitz Centre for Rare Diseases, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.; I. Department of Medicine, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.
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