Assessing healthcare experiences and barriers to care among individuals with ectodermal dysplasia.
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| Title: | Assessing healthcare experiences and barriers to care among individuals with ectodermal dysplasia. |
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| Authors: | Swanson AK; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA. aswanson146@gmail.com., Hammersmith KJ; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA., Peng J; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA., Kramer KK; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA., Wapner A; College of Public Health 250 Cunz Hall 1841 Neil Ave. Columbus, Columbus, OH, 43210, USA., Meyer BD; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA. |
| Source: | Orphanet journal of rare diseases [Orphanet J Rare Dis] 2026 Mar 05; Vol. 21 (1). Date of Electronic Publication: 2026 Mar 05. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
| ISSN: | 1750-1172 |
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| DOI: | 10.1186/s13023-026-04247-z |
