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Assessing healthcare experiences and barriers to care among individuals with ectodermal dysplasia.

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Title: Assessing healthcare experiences and barriers to care among individuals with ectodermal dysplasia.
Authors: Swanson AK; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA. aswanson146@gmail.com., Hammersmith KJ; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA., Peng J; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA., Kramer KK; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA., Wapner A; College of Public Health 250 Cunz Hall 1841 Neil Ave. Columbus, Columbus, OH, 43210, USA., Meyer BD; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2026 Mar 05; Vol. 21 (1). Date of Electronic Publication: 2026 Mar 05.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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PubType: Academic Journal
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  Data: Assessing healthcare experiences and barriers to care among individuals with ectodermal dysplasia.
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  Data: <searchLink fieldCode="AU" term="%22Swanson+AK%22">Swanson AK</searchLink>; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA. aswanson146@gmail.com.<br /><searchLink fieldCode="AU" term="%22Hammersmith+KJ%22">Hammersmith KJ</searchLink>; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA.<br /><searchLink fieldCode="AU" term="%22Peng+J%22">Peng J</searchLink>; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA.<br /><searchLink fieldCode="AU" term="%22Kramer+KK%22">Kramer KK</searchLink>; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA.<br /><searchLink fieldCode="AU" term="%22Wapner+A%22">Wapner A</searchLink>; College of Public Health 250 Cunz Hall 1841 Neil Ave. Columbus, Columbus, OH, 43210, USA.<br /><searchLink fieldCode="AU" term="%22Meyer+BD%22">Meyer BD</searchLink>; Nationwide Children's Hospital 700 Children's Drive Columbus, Columbus, OH, 43210, USA.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2026 Mar 05; Vol. 21 (1). <i>Date of Electronic Publication: </i>2026 Mar 05.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1186/s13023-026-04247-z
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        Text: English
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              Text: 2026 Mar 05
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