Brief Report: The Negev Hospital-University-Based (HUB) Autism Database.

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Title: Brief Report: The Negev Hospital-University-Based (HUB) Autism Database.
Authors: Meiri, Gal, Dinstein, Ilan, Michaelowski, Analya, Flusser, Hagit, Ilan, Michal, Faroy, Michal, Bar-Sinai, Asif, Manelis, Liora, Stolowicz, Dana, Yosef, Lili, Davidovitch, Nadav, Golan, Hava, Arbelle, Shosh, Menashe, Idan
Source: Journal of Autism & Developmental Disorders. Sep2017, Vol. 47 Issue 9, p2918-2926. 9p.
Subjects: Genetics of autism, Academic medical centers, Autism, Child behavior, Database management, Databases, Ethnic groups, Medical information storage & retrieval systems, Neurology, Acquisition of data, Electronic health records
Abstract: Elucidating the heterogeneous etiologies of autism will require investment in comprehensive longitudinal data acquisition from large community based cohorts. With this in mind, we have established a hospital-university-based (HUB) database of autism which incorporates prospective and retrospective data from a large and ethnically diverse population. The collected data includes social-demographic characteristics, standardized behavioral testing, detailed clinical history from electronic patient records, genetic samples, and various neurological measures. We describe the initial cohort characteristics following the first 18 months of data collection (188 children with autism). We believe that the Negev HUB autism database offers a unique and valuable resource for studying the heterogeneity of autism etiologies across different ethnic populations. [ABSTRACT FROM AUTHOR]
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Database: Psychology and Behavioral Sciences Collection
Description
Abstract:Elucidating the heterogeneous etiologies of autism will require investment in comprehensive longitudinal data acquisition from large community based cohorts. With this in mind, we have established a hospital-university-based (HUB) database of autism which incorporates prospective and retrospective data from a large and ethnically diverse population. The collected data includes social-demographic characteristics, standardized behavioral testing, detailed clinical history from electronic patient records, genetic samples, and various neurological measures. We describe the initial cohort characteristics following the first 18 months of data collection (188 children with autism). We believe that the Negev HUB autism database offers a unique and valuable resource for studying the heterogeneity of autism etiologies across different ethnic populations. [ABSTRACT FROM AUTHOR]
ISSN:01623257
DOI:10.1007/s10803-017-3207-0