Family caregivers' and professionals' stigmatic experiences with persons with early‐onset dementia: a qualitative study.
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| Title: | Family caregivers' and professionals' stigmatic experiences with persons with early‐onset dementia: a qualitative study. |
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| Authors: | Werner, Perla, Shpigelman, Carmit‐Noa, Raviv Turgeman, Lilach |
| Source: | Scandinavian Journal of Caring Sciences. Mar2020, Vol. 34 Issue 1, p52-61. 10p. 1 Diagram, 2 Charts. |
| Subjects: | Diagnosis of dementia, Attitude (Psychology), Psychology of caregivers, Focus groups, Medical personnel, Scientific observation, Social isolation, Social stigma, Thematic analysis, Cross-sectional method, Data analysis software |
| Abstract: | Objectives: Recently, research has focused on understanding the needs of persons with early‐onset dementia and their family caregivers who often experience stigmatic beliefs. However, to date, research has not provided a thorough and deep understanding of the stigma formation process and its implications for this population. Thus, the aim of the present study was to explore the stigma formation process as experienced by family members as informal caregivers of persons with early‐onset dementia, and professionals as formal caregivers who are involved in the development, management and provision of services. Method: We conducted three focus groups with 16 participants, including spouses of a person with early‐onset dementia and professionals. The focus groups' transcripts were analysed following a thematic analysis procedure. Results: Results indicated that both family members and professionals encounter stigmatic experiences because of their association with younger persons with dementia. Lack of knowledge emerged as the main antecedent and emotional burden as the main consequence of stigma. Conclusion: Stigmatic experiences emerged as a pervasive and complex phenomenon among formal and informal caregivers of persons with early‐onset dementia, suggesting the need to developing a comprehensive and integrated approach to reduce them at the individual, professional and societal levels. [ABSTRACT FROM AUTHOR] |
| Copyright of Scandinavian Journal of Caring Sciences is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Objectives: Recently, research has focused on understanding the needs of persons with early‐onset dementia and their family caregivers who often experience stigmatic beliefs. However, to date, research has not provided a thorough and deep understanding of the stigma formation process and its implications for this population. Thus, the aim of the present study was to explore the stigma formation process as experienced by family members as informal caregivers of persons with early‐onset dementia, and professionals as formal caregivers who are involved in the development, management and provision of services. Method: We conducted three focus groups with 16 participants, including spouses of a person with early‐onset dementia and professionals. The focus groups' transcripts were analysed following a thematic analysis procedure. Results: Results indicated that both family members and professionals encounter stigmatic experiences because of their association with younger persons with dementia. Lack of knowledge emerged as the main antecedent and emotional burden as the main consequence of stigma. Conclusion: Stigmatic experiences emerged as a pervasive and complex phenomenon among formal and informal caregivers of persons with early‐onset dementia, suggesting the need to developing a comprehensive and integrated approach to reduce them at the individual, professional and societal levels. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 02839318 |
| DOI: | 10.1111/scs.12704 |
